Friday Morning (or is it night time?)
Radiation went okay today and mommy and Rebekah were home at about 8:30. It was a long night before that. Shots and meds at 9pm. G-tube shut off at midnight. Shots and meds at 4am. Up and out the door at 5am.
Now that we are home, Rebekah is being very needy (as you can imagine). She has some very particular ideas about who can do what for her. Its not just that she wants cold water. Its that daddy has to get the water but mommy has to give it to her. If the wrong person turns out the light she throws a fit. If she is in bed she wants to be on the couch and vice-versa. Etc. And of course, there is no uniformity to her desires so we have to guess and are usually guessing wrong.
We fully understand that she is going through so much and are giving her SO much grace no matter how much it is wearing on us. Somewhere soon, however, we are afraid that she is going to start “calling the shots” just because she can and then it will all end.
As you can see and/or imagine, we are not getting much sleep and no rest. We welcome a routine here and look forward to settling into one. In the meantime, however ?!?!?!?!?
Thank you all for being there, for supporting those who have donated and supported us, and for encouraging the business that you know to help wherever possible. You may recall that Pepper’s Mexican Restaurant in Hillsboro, Oregon had a fund raiser for us – giving a percentage of their total intake over a 4 day period last week. They presented us with a check for $870.00 to go into Rebekah’s Trust. That was awesome, but even more awesome was the fact that they were packed from Thursday through Sunday with people who were there saying they wanted to support Rebekah. People even called them (those of you that were too far away to come?) to thank and ask about the support. The support we have received really keeps us going in so many ways.
Please continue to pray for our strength as well as for Maggie, Josh, (links for both on the right side here), Gage and the other children suffering greatly with this dreaded disease.
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13 Shared:
Continuing to pray for healing, rest, happy spirits, and peace. You are enduring so much but you are so strong and an example to us all....
I hope you can all get into a routine and get some rest. So glad you're home.
As always Scott and Francis I am with you in prayer. God bless Peppers. I am thrilled and wont eat any other Mexican food in Hillsboro EVER. (That is a challenge in this town!) When we went there it is SO apparent that the folks there are great people!
I will lift y'all up in prayer all 4 services this weekend. I will also include the other little ones.
God Bless my friend
You amaze me every day
Home, there is no place like home. Adjustments, there is nothing like adjustments. It sounds like things are settling down, even if it doesn't really appear so...I know many 3 year olds who want what they want, when they want and from whom they want it, so sounds pretty normal...although I do realize that can be exhausting as well. I am glad treatment went well and you were able to be home before the holiday traffic started later this afternoon/evening.
Praying for the Adam's family. Praying hard.
Glad to see that you are home. Sorry it is so frustrating:)
Rebekah will get back to being a regular kid soon and then you will love when she is bratty and sassy and you will laugh at how good it is to see!!
How awesome to get such support from peppers and everyone who went in there to help out!!!!
Prayers as always!
I'll be praying for sleep, rest, and rejuvination, as well as a set routine that may make things easier.
You're all in my thoughts and prayers (including Maggie and Josh)
Good news that you're now home. Will redouble prayers that you all can get some rest.
glad you're home, I hope it gets to feeling somewhat "normal"!! still praying for you. all of you.
I was telling a client of mine just not 15 min ago about your daughter and why I wear the bracelet....he handed me a $5 bill.....How is that for coolness!!? ~Caron
always always praying for you
I'm praying for endurance, comfort, and a sweet peace over your home.
That whole "I want mommy to do this. I want daddy to do that." thing is such normal 3-yr-old behavior! All 3 of my children went through that phase. It can be exhausting, especially when you want to grant the grace but want to know when to say "when". I will be praying for your sanity and the ability to navigate through it wisely.
Ditto on the three-year-olds wanting Mommy or Daddy or whomever to do whatever. Olivia displays that behavior on a daily basis. Although it can often be very frustrating, it's great to hear that Rebekah is doing something typical and normal!
We continue to pray for you - our prayers today have been focused on you all getting some much needed rest and being able to get back into a somewhat normal routine.
Praying in Pennsylvania,
Deb, Randy and Olivia
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