Home at Last - and tired
And it seemed to take forever to get here. We finally got Rebekah into the house after 6pm and have just started to get her supplies unloaded.
She is on G-Tube feeding 18 hours a day which is one pump and a set of tubes. Every 8 hours she gets antibiotics which is a single syringe put into another pump and set of tubes for a 25 minute period.
Here is a picture of Rebekah on the couch at home (with her new playroom in the background. I apologize for the haze, it seems Rebekah has managed to get something on the camera lens.
This is more difficult than we expected.
Share a thought or prayer: 26 Comments
26 Shared:
Praise our Glorious GOD!! So glad to hear you are home.
God Bless,
Allie
At last! Still praying.....may Rebekah have some FUN at home, get some great rest ( mommy and daddy too of course)and here's hoping that it gets easier, quickly. Helen.
Dear Rebekah, Frances, Scott, Sarah, Grandmas, Grandpa, Aunts, Uncles, Cousins,
God be with you all!! Aunt Nancy here in OH is such a wimp that the very precious picture of Rebekah on the couch at home with all the stands, tubes, bags, pumps, etc. (and that's one HUGE etc.)really overwhelmed me. I can't fathom all that you will need to do to sustain Rebekah while trying to improve her daily condition/situations. Thank God for Scott & Frances' EMS training here in OH several years ago. It has to help. Hopefully Home Care was able to cut through whatever red tape there was and will be coming to the house to help out and keep a check on her, too.
All our thoughts and prayers continue to go out to you and up to God for strength, peace, healing, comfort, help where needed and praise for all of the help you have already received from so many. Special praise for all the miracles Jesus has already brought to pass for dear Rebekah and for those yet to come.
Love, Aunt Nancy & Uncle Paul in OH
So glad to hear you're home together tonight. I hope everyone has a peaceful, relaxing night.
Debbie
I am glad you made it home. I am sure many things have been more difficult than you have expected. May it get easier as you go.
Get some rest my friend. Praise God she is home again
We are rejoicing that you are home and continue to pray that the Lord will give you strength to handle all that needs to be accomplished in caring for Rebekah.
May the God of peace and hope, keep your heart and mind in Christ Jesus....amen!
Deb, Randy and Olivia
It is so good to see her lying on her own couch at home! It must feel great for all of you to be in familiar surroundings. I continue to pray for you.
Praise our WONDERFUL LORD! She's Home!!! Oh that's so wonderful!
I don't know if ya'll read every blog, but I live in Hillsboro and would love to help if you need anything. Please don't hesitate to email me: sahmama2three@yahoo.com
Oh Father,
Thank You that You have found it time for Rebekah to be at home on her couch. Please, Father, ease her pain, and make her as comfortable as possible.
Lord, I lift up her parents and I ask that YOU would be their strenght. Lord, I ask that every minute of rest they are able to get...that YOU would multiply it by 100. That 5 minutes of rest would rejuvinate them as much as a good night of solid sleep.
Praise You Father, for the works that you are doing. For the lives that You are touching.
Please help Frances & Scott to grow closer through this ordeal. Strengthen their marriage, and grow their love. Make their bond so much stronger. Bless their time that they are able to get alone together, Lord.
In Jesus' Precious Name,
Amen.
so glad she is home. it is very hard at home. The hardest part for me was the feedigs and meds. you will get in the groove and make a routine just hang in there
i'm so glad rebekah's finally home. still praying for her.
God bless.
Thank You Lord for bringing the whole gang home. Please continue to touch them all , helping them to get the rest they need, please let rebekah's transition be an easy one, give Scott and Frances the strength needed to get through each day. You are an amazing God and we thank you for all you have accomplished so far.
It's so good to see Rebekah resting at home. I thank God she was able to get out of the hospital and be in warm, fuzzy place. I prayed for her at Bible study yesterday; I've told so many people to pray for her. Miami loves Rebekah!
I am so relieved that all of you are home again. Yes, it is overwhelming all that you have to do to take care of Rebekah. When my oldest came home after her first lengthy hospitalization and I had to learn how to access her port, give her shots, hook her up to her meds, take her blood pressure and keep a journal, I was very overwhelmed. But, soon, you get used to it - and it was much better than being at the hospital. We'll continue with our prayers for healing and strength.
Glad you're home. Prayers still go out for you.
Hope you all have a wonderful labor day weekend at Home! Continuous thoughts and prayers are with you always! Ox...t
Sometimes nothing feels better than you own bed (or couch). So glad you are home. Prayers continue.
Home Sweet Home, thank you Father
Really glad to hear you were able to come home! Still praying!!
Prayed on the way to the coast yesterday that Rebekah would be able to experience the top down with the sun warming her face enjoying the trees, blue sky, cool marine air like He made for all of us. God is so good and sometimes it takes us to step outside of our normal everyday lives to get a refresher on just how amazing He is!! God is good and I keep on prayin!! ~Caron
It's amazing how our lives change for the children it gets so hard sometimes, but love will keep you going. There's no place like home.
So glad she is home now! I do hope that you all will be able to get some rest...maybe being able to sleep in your own beds will help some. Will continue to pray over this situation.
I administered IV medications and TPN to my son during his 5 months of chemo. He had a Hickman catheter, so cleaning and changing the dressings was a big part of that.
Initially it was hard, but we all do what we need to for our kids, and eventually it became part of our routine.
Prayers that you all settle in soon.
Praying in Seattle...
Literally a huge sigh of relief when I saw this picture! HOME! GOD IS GOOD!
THANK YOU all so much for the comments. I just have to laugh at the "sleep in your own beds" comments. It SURE would be nice to SLEEP in our bed!!!!! I honestly think we got much more sleep at the hospital.
-Rebekah's Daddy
www.HelpRebekah.com
Beautiful, Beautiful, Beautiful, Beautiful Girl!
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