A Good Day

Rebekah was up and "active" for about three hours this afternoon. By "active", I mean that she was sitting up on the couch and wanting books read to her. She couldn't decide if she wanted to sit in Mommy's lap or next to Mommy or totally on her own, so she went back and forth a little bit.

At one point, she wanted to pick out a book herself. Since the books were across the room, I disconnected her from her feeding tube and she actually walked (very wobbly but she walked holding mom's hand) across the room to where the books were sitting on her desk. Once there, she wanted Mom to pick her up and help her pick out a book. Once she had picked two out, Mom set her down to walk back, but she sat down where she was. She turned the pages on the books. One of them was a "touch and feel" book and she was feeling the different parts. Sister came over (she just finished her nap) and played jungle gym on Rebekah. It was good to see Rebekah acting a little more like herself.

Sarah kept taking the books and blankets away from Rebekah, which didn't make Rebekah too happy. They were sure interacting with each other. It was fun to see Sarah playing peek-a-boo with one of Rebekah's blankets. Mom sat for a while with both girls on her lap reading books to them.

Friend Fran came over and spent several hours watching Sarah (so Mom could get a little bit of a nap) and cleaning and brought dinner and some groceries. She was a great help and Mom was able to rest for a couple of hours anyway.

Rebekah has 4 more Radiation treatments. It is great to be able to count them down.

She is doing better with her feeding. She is almost back up to the rate that she was at while in the hospital and her food is fully concentrated. She really needs to be a bit higher, but it is more important that she keeps it down. Keeping her up on the medications seems to be helping with the nausea. One step at a time... It has been more than 36 hours since she threw up. That is a good thing!

She continues to "talk" about eating, although she really isn't doing any eating. She says she wants to eat and wants to sit in Sarah's high chair, but won't eat. At least she doesn't seem to be totally against the idea of eating. We continue to encourage her.