Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Wednesday, September 07, 2005



A Broken Record?

It was another long night.  Even all of the medicine did not totally keep her food down and, in addition to the regular medicines every 4 hours we were up at 3am changing the bedding.  We have gotten pretty routine with this, mommy holding Rebekah sitting on the second “helper’s” bed in Rebekah’s room while Daddy puts on new sheets.  

Then mommy and Rebekah were up and out at 5am.  Daddy was supposed to be taking Sarah to friends Mike and Tara at 6am but Sarah was sleeping so sound that I took the chance that mommy and Rebekah would be home on time and called Mike and Tara and said I will watch over her rather than wake her up.  We really appreciate Mike and Tara’s continued help (cleaning the trailer, planting plants to keep the house pretty, etc.)!

Mommy and Rebekah got home about 9 or 9:30.  Rebekah is coming out of the anesthesia from radiation more and more difficult each day.  We are so excited that there are only 2 more weeks of the radiation.  The burns are definitely starting to appear again on her face and we are really sad about that.

Yes, we are beat but getting by one hour at a time.  Mommy especially is needing to nap every second she can get which is not very many.  Thank you for those of you that have helped so that she can get some sleep.

I feel like a broken record repeating the same information each day but that is our life right now.  Thank YOU for hanging in there with us.  And remember – pray for Maggie to enjoy Disneyland this week.

17 Shared:

At Wednesday, September 07, 2005 12:20:00 PM, Anonymous Anonymous Left a thought...

Daddy&Mommy keep hanging on God has you all in his loving arms
a BIg Bear Hug from Missouri

 
At Wednesday, September 07, 2005 12:56:00 PM, Blogger Pam Left a thought...

Praying, and will not stop. Rest is so precious, today I will pray that God will provide creative ways for mommy to rest. It is so good to know that Chi Chi and Rebekah can spend time together while Rebekah is an outpatient. There is nothing like being in your own home. Mommy, may God bless you with precious rest, moments to smile at your darling daughters, and the peace of knowing He is in control.

 
At Wednesday, September 07, 2005 1:14:00 PM, Anonymous Anonymous Left a thought...

Hey you guys, I just had to see how you were doing. I'm always praying for you guys and always thinking about you. The green band hleps me think of her and other kinds that maybe going through cancer. I don't blam yall not getting enought sleep is hard. You are always in my prayers and through out the day. I'll keep thinking about you all. May the lord watch over your little girl and you. God Bless.

 
At Wednesday, September 07, 2005 1:59:00 PM, Blogger Katie Left a thought...

Never apologize for sharing with us. This is how we know what to pray for and your honesty (no matter if it's mundane or extreme) is the truth. Still praying.

 
At Wednesday, September 07, 2005 2:10:00 PM, Anonymous Anonymous Left a thought...

"broken record" can be good.. :) it means things are holding steady! Sometimes I feel like a broken record on this side, since there are no words to express what I am truly feeling for your family, it seems so little to keep saying "Praying for you". But other than letting you know we are here, and we care, it's sometimes the best we can do...
Still here, still praying..
Allie

 
At Wednesday, September 07, 2005 2:28:00 PM, Blogger Alison Left a thought...

Ditto to what Allie has just said. I'm not going anywhere.

 
At Wednesday, September 07, 2005 2:42:00 PM, Blogger {LyndsD} Left a thought...

Hi... I have been reading for a little bit now, and want to say I am with Allie! Me and my prayers are not going anywhere.

Big hug to you all from AZ

 
At Wednesday, September 07, 2005 2:56:00 PM, Blogger The other me Left a thought...

You have such strength I am astounded by your blog daily! May you all have a blissful sleep and gather some much needed energy. I am still praying for you and your family. so sad to hear that Rebekahs sweet face is beginning to show the signs of burns again. Thankyou for keeping us all so well informed so we know precisely what to pray for. Helen.

 
At Wednesday, September 07, 2005 3:08:00 PM, Blogger Danny Sims Left a thought...

I haven't checked in for a few days... Thanks for the update. We never get tired of reading the stories and it helps us hold you guys up in prayer.

 
At Wednesday, September 07, 2005 4:11:00 PM, Anonymous Anonymous Left a thought...

Rebekah and family, My prayers are with you all thru this time. I am a very special friend of Maggie's. As you know she is in Sunny California today to be treated like a princess at Disneyland. I wish the same for you today and every day. Sweet dreams to you Rebekah and many hugs and kisses.

 
At Wednesday, September 07, 2005 5:23:00 PM, Blogger Deb Left a thought...

Like the previous posts...we are a "broken record" too --reminding you again that we continue to pray! ...the effectual, fervent prayer of the righteous avails much!....we will remain relentless in our petitions to the Lord on your behalf! ...prayer focus today (in addition to Rebekah) is rest and rejuvenation for Frances!!!

May the Lord continue to be your Strong Tower in this war!!

...praying always,
Randy, Deb and Olivia

 
At Wednesday, September 07, 2005 5:29:00 PM, Blogger JodiTucker Left a thought...

Continuing in the prayer ranks with all the others from this blog!
Again, with my one Rebecca at school and three Sarahs, I pray for Rebekah and Sarah at those times right as I teach. So comforting to know God hears and feels our "short" prayers and the longer ones with tears, too.....much love to all of you, Jodi in OH

 
At Wednesday, September 07, 2005 9:01:00 PM, Blogger Darlene Schacht Left a thought...

I hope each day will get better than the day before so that one day you can look back and see how far you've come. I also feel like a broken record when I say, I'm thinking and praying for you all, but it's true.

 
At Thursday, September 08, 2005 6:15:00 AM, Anonymous Anonymous Left a thought...

Never tired of your reports. Never tired of supporting you in prayer. May the Glory of His face continue to shine upon you all.I ask Him to continue pouring out His grace,His mercy and His perfect peace. Embracing you with the light of His love. Have a blessed day!

 
At Thursday, September 08, 2005 6:44:00 AM, Anonymous Anonymous Left a thought...

Just dropped in to see how things are going with you guys. Still praying for you over here in England. Take Care and lots of love to you all.

 
At Thursday, September 08, 2005 8:08:00 AM, Blogger Amanda Left a thought...

i love the song "If you want me to" by Ginny Owens.

i think about your family when i hear it, and i pray for your strength.

 
At Thursday, September 08, 2005 8:27:00 AM, Anonymous Anonymous Left a thought...

I have just received this web site in my mail. I would like for you to continue to think positive at all times. Please know that I hold you all in my thoughts and forever in my heart and prayers. I sincerely pray for rest for all of you. May God hold you in His arms and deliver Rebekah from all pain and anxiety. May she never be scared. God bless her.
Marge Gwartney from Oklahoma

 

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