DRUGS!

Rebekah has slept most of the day.  It is likely a “drug” induced sleep caused by the Ativan that she is getting to keep her (and her systems) calm.  We are getting to the point where we are giving her drugs that can have some pretty serious risks of side effects but those risks are better than the alternative.  

The good news is that her concentration and her rate of G-Tube feeding is up and she has not thrown up since last night.  Mainly this is due to the increase of the Ativan dose and the introduction of an additional anti-nausea drug, Phenergan.    

This is great but, combined with her other drugs, Phenergan has as risk of putting her into tremors such as those in Parkinson’s disease.  If not treated rapidly they could become permanent.  Treatment is an injection of Benadryl or Epinephrine as in an anaphylactic shock.  Those drugs are in the top flip top container of her 5 drawer medicine kit (tackle box) with dosages and everything written out in big bold letters.

Because of the way the drugs all interact, we have to be on very strict 4 hour schedules.  Some drugs being given every 4, some every 8 and some on the odd schedules to the others.  Talk about trying to figure it all out – ugh!  Have you noticed that “ugh!” is a favorite expression?  Maybe its just what we are going through, I don’t know.

On another note, Maggie takes off for Disneyland tomorrow.  It is going to be a long trip for her but, if bathed in prayer, she should be able to have enough energy to see it through.  Rebekah (and mommy) got to see Maggie, her mom and dad at clinic today.  They were very grateful for all of your continued prayers – as are we.