Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.

Wednesday, September 28, 2011


Rebekah has always felt comfortable with a routine, it's been a part of her "quirks." Their hospice counselor warned that routine will be important after mommy's loss, and she was right. Now Rebekah and Sarah are both thriving on routine. When their routine changes up there are emotional and behavioral issues that come right along with those changes.

The last couple of days we have had some "outs" of the routine with daddy taking Rebekah to school one morning, the ALS walk, some hiccups in the evening schedule, etc. And sure enough Rebekah's take home note book is marked with her not listening to teachers and even raising her voice to them. Unacceptable and being worked on. But these things go hand in hand.

Obviously we can't always do things exactly the same way and we do have to learn to deal with some changes to routine. But even when there is a change in the routine there needs to be as many constants as possible. It's my job as a daddy to see to that. If that is difficult to accept, so be it.

3 Shared:

At Wednesday, September 28, 2011 3:29:00 PM, Anonymous Anonymous Left a thought...

Try telling them prior to the 'change'. Expecting the difference might help. Your doing a great job! Good Luck.

At Saturday, October 01, 2011 8:51:00 AM, Anonymous Anonymous Left a thought...

I am one of those who does not do well with change, especially abrupt change. It is something I have had to work hard on and have made great progress over the years. If it is possible to "prepare", it does make a huge difference. Consistency in the accountability for bad behavior and loving reassurances and sometimes discussing the change(s) is even helpful. You are doing an awesome job Scott. God is your strength!

At Tuesday, October 04, 2011 6:08:00 AM, Anonymous Anonymous Left a thought...

We have not met, but I have read your blog for some time now. I thought I would share a website with you that helped me navigate the journey through grief. offers a year of daily emails that help to describe what is happening to you. My husband also found it very helpful to know someone understood the horrible loneliness associated with grief.


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