Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
____________________________________

Friday, July 22, 2011



Hospice

This week we switched to Hospice. We met with most of our team the end of last week and with the kiddo counselor, Michelle, earlier this week. They are an awesome team. As we shared in a previous post, the nurse Trisha is a nurse that treated us in the hospital when Rebekah was sick and remembered us well - like most nurse that have the fortune/unfortune? of dealing with us. She is SPECTACULAR and just having her here a couple of times this week has been great. We have also had a bath (and will have another tonight) with the new bath aide Teena. Although we miss our previous care team greatly, these gals have been great and already I can tell that bringing them on is indeed a huge blessing.

So far Michelle, the kiddo counselor, has met with girls 5 times over 4 days. They are all hitting it off very well and the girls are opening up to her well. This was a concern in the short time they have before mommy's death but is working out as good as can be. They are playing with her, talking with her, listening to her and getting a lot out of it. We too are getting a lot of comfort after watching Michelle with the girls and talking to her afterward.

The big boy and girl counselor, Melodie has also been great. Last night Melodie met with about 15 people who were either family or frequent care givers to answer questions, give a time to share, vent or ??? We spent about an hour and half together and it was good. It was hard for mommy to have this going on out in the living room while she remained in her bedroom just watching on the security camera, but watching all of life go on like that has been hard.

Yesterday morning Trish, Melodie, mommy and daddy all met and did a conference call with the doctor over seeing the end of things. Dr. Louis Libby from the Oregon Clinic is spectacular and we couldn't be blessed more. He is working well with all of us to make sure that mommy's hopes and desires for her last days are being met and that she will be able to go off to heaven peacefully next Tuesday.

Only mommy knows for certain, but the rest of us can try to imagine how hard it must be to make that decision to walk to God, knowing all the glory that is there, but at the same time knowing that this means leaving the earth and your family behind. It's okay mommy, we love you and always will. It will be tough, sad and a lot of other things, but you have prepared us well. It's okay to go. We will be okay. We love you.

5 Shared:

At Friday, July 22, 2011 12:01:00 PM, Blogger LisaLisa Left a thought...

I should know better than to read your blog while I am TRYING to work. Ugh. My prayers and thoughts continue hourly for your family. Glad to read that the girls like their counselor, THIS is important.

 
At Friday, July 22, 2011 12:26:00 PM, Anonymous Anonymous Left a thought...

This is so beautiful. the thought, care, and detail that has gone in to making sure everyone is OK, and that the wishes of Frances are arried out, are awesome. I am so glad that the people that you have chosen to help you all through this journey, are there for you all. They sound like amazing people. It is also heartwarming to know that the girls have someone they connected with, and that the adults have someone to bounce things off of. Again; mu mind is boggled, as i try to wrap my head around what you all are going through. Prayers continue you now, and always.

Dale and Leslie

 
At Friday, July 22, 2011 5:05:00 PM, Blogger Deb Left a thought...

Praying....praying...praying...
...always and still...

I wish I could do more.

 
At Friday, July 22, 2011 5:25:00 PM, Blogger Debbie Left a thought...

This one really brought tears to my eyes. Once again, you're all in my thoughts and prayers. Thank you for sharing this journey with us. It's both eye-opening, reaffirming and thought-provoking.

 
At Friday, July 22, 2011 5:42:00 PM, Anonymous Teresa Mathia Left a thought...

Again,thank you for sharing. My heart aches and so many tears for all of you. God continue to hold you close....

 

Post a Comment


Thank you from Rebekah...

Back to Rebekahs home page...