Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Saturday, September 04, 2010



Post Surgery

Lots of stuff over the last 24 hours.

Right about noon on Friday mommy went into surgery for a tracheotomy (tube in her throat to breathe through) and to be connected to a ventilator. Surgery was short at about an hour. She did great. Right after surgery she came back to the Intensive Care Unit where we still are today. She is in a lot of pain and we are trying to keep her heavily sedated although she has been able to answer questions and is not quite "out of it."

Last night Grandma M came and stayed in the room with mommy so that daddy could go get some sleep in the van. The area that he had slept in the van in the past was an out of the way parking deck but this time he decided to move to the main parking deck to be closer to the Emergency Department entrance which is the only one that you can come into during the night. Big mistake. More traffic and more light. Solved the later by putting some jackets blocking the front windows but that drew too much attention apparently as he found himself being woken up by radios outside the van at 3:00am and then having to explain to security what he was doing there. There is some talk that there may be some room somewhere here in the hospita that daddy can get some real sleep and maybe do a little work while we are here - we have a nurse and a respiratory therapist right now that is pushing for us.

The girls are on their way to Candlelighter's Family Camp. A year ago Sarah "married" Alex and they took their honeymoon on a golf cart to Sacramento. This year Alex's family was gracious enough to come pick up our van and take our girls and their two kids all to camp. We will miss being there with the girls (and seeing how the camp turns out as mommy and daddy were both on the comittee who put the camp together) but we are glad that the girls get to go.

Where we go from here today is up in the air. We may stay in ICU or we may go back to her main room on the respiratory ward. We will be in the hospital 7-10 days so that the tube can heal enough to be taken care of at home. When she comes home she will have to be on a ventilator 24/7. There is a chance that she will be able to talk a little bit by moving some air around the tube over her vocal cords but that is not for sure yet. We were not counting on this at all so it is a pleasant surprise that there is at least a chance.

Having someone with mommy at the hospital (days and nights) so that Daddy can be home for some work and to get the girls off for their first week of school is our biggest need right now. Please pray for that and if you may be in a position to be able to help with that please give Nancy (our Volunteer Coordinator) a call or email: 5o3-648-34 Seven Six, or njbmiller AT GEEEEMail.com

Emails are great as are comments here (or on daddy's facebook: search for adamsesq @ that yah... place.com) but visitors are not so much right now.

2 Shared:

At Saturday, September 04, 2010 10:48:00 AM, Blogger Kim Meyer Cameron Left a thought...

Praying for help, Frances' comfort, your peace, and for the girls to have a great time at camp!

 
At Saturday, September 04, 2010 1:06:00 PM, Blogger Graceful Moments Left a thought...

Praying for the help to meet your immediate needs, comfort for all of you, peace, needed rest for you and God's healing hand to reach down and perform a miracle. I will pray for healing until there is no longer a need for healing because I believe that God is a God of miracles, no matter how big they are!
Praying too that the girls have fun at the camp.

 

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