Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Hospital Day - Rebekah
Changing gears on you here. Daddy and Rebekah are off to the hospital for 4 1/2 year scans. Praying mightily for the wonderful three letters - NED - No Evidence of Disease. We are almost to that miraculous 5 year milestone.
This will be the first time daddy has done this alone and there are A LOT of emotions that are going along with that. All night long all daddy could dream about was trying to figure out how to take mommy, who is almost completely bedridden, to Rebekah's funeral...
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Do you know the phrase "anticipatory anxiety"? Look it up and then try to stop yourself from going there. This is a very difficult time for you. Very difficult doesn't even describe it ... but you need to take care of YOU which I realize is much easier said than done. The possibilities can make you ill. Deep breathing and lots of prayer!!
Oh Scott, please don't go there in your mind... that's more than anyone should ever dwell on. Praying for NED scans today. Has it really already been almost 5 years?
And it begins. We have done this every three months for four and a half years. Yes, we do check in here for the xray
machine in the ER. No, we don't go straight to MRI until after you check us in and call the ER to send a tech to come get us for the xray. What do you mean that can't br correct. Yes please do call your supervisor. Oh she said I was right did she? Yes, I did tell you so.
So it really is going to be one of those days. We're really sorry you got up at 5am and drove an hour to be here, but the machine doesn't seem to be working. Can you come back tomorrow?
May you be enfolded in the arms of the Lord today - keeping you in my prayers
Not going to believe this. Not only is the MRI down but so is the panorex. Now this trip has totally been a waste. Geez sorry.
After waiting several more hours at the hospital for things to get fixed, daddy and Rebekah are now home after an eventful morning that started WAY to early this morning and went on WAY longer than planned, but we are home.
Coming out of anesthesia is always difficult for Rebekah (like it is many folk) and she is always screaming, crying, emotional, etc. This was the first ever procedure Rebekah has had that mommy was not by her side. All the way home she kept screaming "I miss mommy. I love mommy. Mommy not here..."
Daddy had to wait until he got home to go into his office and just cry.
so raw. so sorry. nevertheless, not my will, but Thine be done...
Oh, how the mind can plague us if we let it. I'm so very sorry for all that has been placed on your plate. I know God is good. I know all is in his control, even when we don't understand.
Oh, my heart is just breaking for you. I can not imagine what you must be feeling. You are a very courageous man and your family is very blessed to have you there by their side. I must say that I completely agree with 'Sue Z', be sure to take time to take care of YOU! If you have people offering to help, let them. If not, ASK! You are going to be much more efficient and a lot more help to your 'girls' if you are getting some breaks in there somewhere. My husband has just one sick person to take care of...me! However, he still needs what we call 'mental health breaks'. It is a big job to care for sick folks, especially seriously ill people whom you love dearly. Make sure you gets some breaks in there. You need it and they need for you to have them.
In the meantime, please know that we are continuing to pray for you and your family. Please let us know if there is ANYTHING specific, that may not be obvious, that you would like us to pray for. We would be honored.
Blessings,
Teresa <><
♥ Too Many Heartbeats ♥
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