Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.

Sunday, August 22, 2010

Needing Help - Can You Help?

We have reached the next stage. Throughout the summer we have received a lot of "live in" help with Genia, Annie and Frances' mom. Now that summer is over we are loosing a lot of that help. Unfortunately that also comes at a time when Frances is getting worse and needing more.

Right now Frances is in bed 75% of the time and in the wheel chair 25% of the time. Throughout the day she needs medicines, being fed, moved around in bed and just generally having someone keep her company. She also needs some tending to a couple of times a night as well.

The house also needs some caring. Cooking, cleaning, organizing, helping the girls get to school/get home (on and off the bus), meals, etc. Once the girls are home from school they also need some attention.

While I can do some of this, I can't do it all and continue to work. Without work we don't eat or have insurance. Although I do a lot of my work from home, if I need to leave we need at least 2 people to be with Frances (and/or the girls.)

So mainly, we need bodies for part/all of any day or night. It doesn't take any special training although not being afraid of bodily fluids can help - kind of like being a mom! Unfortunately we are not in a financial position to pay for someone to help with these things (there are people out there for $15-20/hour) and because we are trying very hard not to go on need based medicare, we don't qualify for any free in home help.

Starting this week we have a formal care organizer (thank you Nancy) that will be helping to organize all of you that are willing to help. In order to get her up to speed it would be real helpful if you could reply to [scott and frances AT (take out the spaces and use the right symbol)] with who you are, what/when you could help and an email, phone number and home address we can prepare a master list of people that Nancy can call on when we share our needs with her.

And of course, please be praying for us, for help, for finances, etc. Thank you.

3 Shared:

At Sunday, August 22, 2010 10:18:00 AM, Blogger Sue Z Left a thought...

I am so sorry that I'm not in a position to help. I live on the other side of the country or I would definitely be stopping by regularly ... Your family has touched me so. I will be praying for you and if I have any useful thoughts I will pass them on. Are you sure that Frances doesn't qualify for a limited home health aide? Even if it were only for a couple of hours per week to help her with her self care? Is she getting at home PT and OT? OT can also take care of some of her daily hygiene needs .... well they can "instruct" a caregiver how to do transfers, bathing, so forth ... and while they're instructing, they're doing.

I'll keep thinking.

At Sunday, August 22, 2010 2:32:00 PM, Anonymous Anonymous Left a thought...

What about Social security? Are you receiving disability funds from SS yet? That could be used for paying for professionals. Or what about hospice care? Doesn't your insurance partially cover any of this?

At Sunday, August 22, 2010 4:06:00 PM, Blogger Stephanie Roscoe-AFN Ministries Left a thought...

How can those of us (like me) who can't help with time can help financially?


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