Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.

Saturday, August 14, 2010

Morning After

Thanks Teresa for the reminder. I guess I hadn't realized that I hadn't put up an update this morning.

The night went pretty well as far as nights in the hospital can go. Mommy continues to have breathing problems; that is our focus now. Either we can ween her off oxygen or we'll have ongoing problems. She needs her breathing machine or her saturations fall into the 70's which is not good. With her breathing machine she was at 96 with lots of oxygen (15lpm) and daddy is actively working on lowering that. We are at 8lpm right now and she is maintaining at 93% or so. Our goal will be in the 90's with no oxygen. Daddy also ordered a meter that will be delivered at home on Monday if Amazon/FedEx work right together.

We JUST spent about 30 minutes suctioning out her mouth, nose and throat as she felt like there was a lot of mucous building up - and she was right. It brought on a lot of pain and she needed the pain killers that she was trying to see how long she could go without. But she is resting peacefully again, hopefully with a slightly more comfortable mouth/nose/throat.

Only time will tell, but daddy's guess is that we are going to be here a while.

2 Shared:

At Saturday, August 14, 2010 4:00:00 PM, Anonymous Anonymous Left a thought...

Thanks for the new update. Hoping for you all to be back in the comforts of being home again very very soon. Send my greetings and love to Frances.==Teresa Mathia

At Saturday, August 14, 2010 6:13:00 PM, Anonymous Darlene Left a thought...

"You will keep him in perfect peace whose mind is stayed on Thee, because he trusteth in Thee." What a blessing that you can serve your wife in her time of need and that others can care for your children so that you can be together! Remember the old hymn? "Count your them one by one...count your many blessings, see what God hath done!" I so wish I could hug you both!


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