Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.

Tuesday, August 17, 2010

Home Again - Rough But Worth It.

Yesterday at 6:00pm they did another surgery on mommy to put a catheter straight through her side into her bladder rather than having to go up through her urethra. Although the staff at the hospital was not exactly fond of the idea, we had worked out with them that as long as mommy was stable after the surgery we were leaving last night. And at 9:00pm we did.

By 11:00pm mommy was home and in bed. She is on oxygen and/or a breathing machine all the time, is taking her food and medicine through a feeding tube and is generally happy to be home. It's rough but worth it.

She continues to have a lot of head/neck pain. We believe this is because the muscles in her neck have been affected by the ALS and she just doesn't have the strength to hold it up anymore. Hopefully we can get some answers from PT when we see that therapist here at the house in the near future.

Again, it's rough but worth it.

4 Shared:

At Tuesday, August 17, 2010 6:52:00 PM, Anonymous Darlene Left a thought...

But he said to me,"My grace is sufficient for you. My power is made perfect in weakness." Therefore I will boast all the more gladly about my weaknesses, so that Christ's power may rest on me. 2 Corinthians 12:9
We're praying for you!

At Tuesday, August 17, 2010 7:42:00 PM, Blogger Debbie Left a thought...

The care we give to those we love is always worth it!

At Wednesday, August 18, 2010 8:40:00 AM, Anonymous Anonymous Left a thought...

So absolutely happy that you are all at home together. Rejoicing and thanking Father God for answered prayers. There IS no place like home.
Love, Teresa Mathia

At Thursday, August 19, 2010 11:26:00 PM, Blogger Kim Meyer Cameron Left a thought...

I have prayed and will continue to pray. "May God give you more and more grace and peace." 2 Peter 1:2


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