Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Thursday, September 02, 2010



At the hospital - again.

Ok, here we are again. We are trying to get mommy's tracheotomy put in and have her put on a ventilator. You would think that, given that every doc/nurse we have dealt with in the last 7 days has insisted on a vent, that this would be easy. No chance.

Over 24 hours of trying to get a confirmation that we could get this done before the holiday weekend and finally we headed to the hospital after being told "everything is ready for you but we don't know if it will get done...." What the heck?

We got here around noon and got admitted. They did all the tests they needed to do to determine that mommy was okay to have the surgery - she was. But oh no, no surgeon can do it. Actually the surgeon could but won't because she is too tired having been up for 3 days and this isn't "an emergency." And we can't find out about tomorrow's schedule until tomorrow. This system sucks.

We will spend the night in the hospital tonight but if they can't get us on the schedule tomorrow it won't be until Tuesday so we'll be going home. There are lots of frustrations going on here and we won't hit you with all of them, but be praying for us. Apparently you should be praying that it doesn't become an emergency and we end up with a tired surgeon... Did we mention that this system sucks?

3 Shared:

At Thursday, September 02, 2010 7:23:00 PM, Anonymous Darlene Left a thought...

I do wish we lived closer...
Tim's mom has had a trach and ventilator for several years now. We'll be praying that it will give Francis the assistance she needs to be able to breathe!

 
At Thursday, September 02, 2010 7:26:00 PM, Anonymous Darlene Left a thought...

Oops...should've spelled checked that! Does Frances get tired of people misspelling her name like our Nicolas does? :)

 
At Friday, September 03, 2010 6:12:00 AM, Anonymous Leanne in Pa. Left a thought...

I can feel your frustration, but hang in there. All in Gods time. Praying still.

 

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