Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.

Sunday, September 05, 2010

Almost Back To "Normal"

Normal is taking on a new meaning for us. We are back in the "standard" respiratory wing. 2R29 at Providence Portland for those that are taking notes. Like when Rebekah was in the hospital, there always seems to be one room that you get more often than not - for us this is it.

Mommy got out of ICU yesterday about 5:00. We had a bit of a problem that delayed our move and has put one of the greatest nurses we have had in a bit of a scare. Please pray for her for peace goodness.

Once back in our regular room the set up began. Mommy is on a ventilator that does all of her breathing for her and continuously sends her vital statistics to the nurses desk via wireless - pretty cool. Daddy even helped get their modem working right when it was not sending one of the data streams correctly.

Last night Uncle Chuck came and "slept" in the room with mommy. Slept is obviously a euphamism for sat up next to her overnight. Although this morning when daddy came into the room Uncle Chuck was laying down asleep on top of the air conditioner - the same type that hotel rooms often have. That had to not be comfortable. Daddy slept in the van with the air mattress blown up this time. The air mattress combined with no early morning encounters with security made for a pretty good night.

This morning we set up a talking computer loaned to us by the ALS Society. Mommy is busy building phrases that she wants to be able to say to us. She can build them with letters or words just by clicking on a mouse. When her hand can't do a mouse anymore she can control the cursor and click just by moving her head - it's pretty cool. It's a Dynavox V Max for anyone who wants to look it up.

Haven't heard anything since yesterday afternoon about the girls so camp must be going okay.

Pray for a good recovery period and for strength for mommy and those taking care of her. Especially pray for our nurse friend please.

3 Shared:

At Sunday, September 05, 2010 4:05:00 PM, Anonymous Leanne from Pa. Left a thought...

Praying for all of your requests and for the miricle that I know God is able to preform. Glad the girls were able to go to camp. It provides some fun for them with everything that is going on with Frances and I'm sure they are being will cared for.

At Sunday, September 05, 2010 10:32:00 PM, Blogger Wendy Ploegman Left a thought...

Your family has been on my mind the last couple of days, so I came here for an update. I now know why Heavenly Father placed you in my mind. As you know there just aren't any words, Scott you are in overdrive right now and I pray you will get the much needed homecare Francis and your family needs. Your family has never left my prayers. I saw a quote on Friday that filled my heart. "Friends increase your joy and divide your grief". I pray for the peace you are seeking and also pray that your joy will be increased 10 fold and your grief divided 10 fold. I know Heavenly Father was instrumental in bringing our families together through Guy's van. If you would just like to talk or vent with someone who has walked in your shoes, please don't hesitate. When Guy was sick we were involved with Discoveries through Mary Bridge Childrens hospital here in Tacoma, if you haven't asked at the hospital yet please do ask them if there is a support group like that offered to children and spouses of those that have terminal illnesses, it was a great help to me, but especially to Amanda.

At Monday, September 06, 2010 7:17:00 AM, Blogger Rebekah Christine Left a thought...

Thank you Wendy. I have spent since Thursday living out of and sleeping in Amanda's Daddy's van. Every moment I am in it I am eternally grateful to you guys and think about you often.


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