Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, January 16, 2006



Monday Morning

Today will be a regular trip into clinic this afternoon to see how Rebekah's blood counts are doing. With it being a holiday, Grandma M has the day off and will come to the house to watch Sarah while Mommy and Rebekah go into clinic. That will make it much easier for Mommy!

Rebekah seems to be doing ok right now. The claritin seems to be helping. She continues to ask for her "blue" medicine (morphine) periodically and wants lotion on at night time. It does seem, that once she has the lotion on, she falls to sleep. Go figure! Although, I will say that I have given her a lotion with lavender and other ingredients to help soothe to sleep. Maybe we need to add lotion to the regular bed time routine. If it helps put her to sleep, I'm all for it.

The stool softener did it's job and I was a bit sorry for giving her the second dose. The next morning was a bit messy, several times. It seems to have settled down now and other than a little bit of a rash that cleared up fairly quickly, she doesn't seem any worse for it.

I got some new nutrition bags to try that do not use the pump, but just gravity. They have a clamp on them, so that between that and the height of the bag you can have good control of the rate. I thought these might help with meal time larger feedings. I tried it out yesterday. It was not without its problems. When I put her to bed last night, I should have used a new bag and the pump (hindsight is 20/20), but I thought "I'll just slow the rate on the gravity bag and it'll be fine". Well, I slowed the rate down, but just after leaving the room it must have gone to nothing. When I woke up this morning and checked on her, she hadn't gotten much of the nutrition in her. So yesterday, she didn't get nearly enough. Uugh! I guess there is always something new to learn.

Yesterday was a busy day of moving furniture around in Daddy's office. Grandpa brought a table (work surface) for the "reception" area. It was a lot of work (mostly on Daddy's part), but the office is looking much better. Daddy had to do a lot of cleaning and organizing, too, as part of the project. With the furniture moved, he was able to get some of the trim in place and nailed in. I'm sure he feels better having gotten a lot of work done in the office yesterday.

Meanwhile, his cold seems to be bothering him and I'm not feeling to well either. I guess that is what happens during the winter.

4 Shared:

At Monday, January 16, 2006 11:17:00 AM, Anonymous Anonymous Left a thought...

hope you 2 have a safe trip to the clinic, and the blood count is good :)
but sorry to hear that mommy and daddy still have their colds,
have been praying for you and your family. take care
hugggss
janice

 
At Monday, January 16, 2006 11:50:00 AM, Blogger Eva Left a thought...

How is she doing now with eathing by mouth? Still hit and miss?

 
At Monday, January 16, 2006 1:07:00 PM, Anonymous Anonymous Left a thought...

I check in to Rebekah's Page every evening to see how things are doing. Also share with prayer partners at Laurel Church and we pray for your family each day as well as Thursday mornings when 3-4 women get together. We hope you have a good report at the clinic today.

 
At Monday, January 16, 2006 6:16:00 PM, Anonymous Teresa Left a thought...

Looking forward to read how clinic went today. So good to see progress in alot of areas of home and life. God Bless!

 

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