Monday Evening

Our clinic appointment went well. Her counts are still doing well and all is generally good. We do not need to go back to clinic until next Monday when we should be admitted for our last Chemo treatment. Rebekah's Chemo Pal met us at clinic and played with Rebekah and helped to entertain her while we waited. It was good to see her again.

Don't get me wrong, Rebekah has issues. She continues to sneeze and need an antihistimine. Her occasional cough seems pretty painful and she needs at least one dose of morphine most days. She eating only an occasional bite here and there (she did eat 3 or 4 bites of cooked carrots tonight - the most I've seen in weeks), so basically all of her nutritional needs are having to be met by g-tube feeds. She has bouts of throwing up. It just seems that nothing has gotten dramatically worse in the last few days. With as many kids as are having serious problems, I count my blessings that we are hanging in there. Yet it makes me wonder what sort of issue might be around the corner for us and when will it hit.

Rebekah's left eye is a little puffy (but not red) and I was a little concerned about whether it might be infected. I didn't really think so, but knowing that her tear duct is blocked it had me concerned. That was one of the things that the eye doctor wanted us to look out for, and if it became infected he would want to unplug it before we were done with chemo. I asked the Nurse Practitioner if I needed to be concerned about it and she told me it did not appear to be infected. That was good to hear.

We saw Kennedy's mom (and Kennedy) at clinic. She is still having a rough time. She is at home, but having lots of struggles. Please continue to pray for her and her family. Kennedy seems really sad and could use some encouragement.

After Clinic, we headed up to the floor to check in with Gage and his Mom. We chatted for a while. They are hoping to go home tomorrow. His counts are coming up a little. He can still use a lot of prayer. Gage isn't wanting to do much other than lay in bed and watch TV.

Grandma M stayed until both girls were in bed. Daddy wasn't home when Rebekah went to Bed (he was at Fire Department Drill) and she was not at all happy that she couldn't give him Night Nights. She tried to get out of bed a couple of times to go find him. I explained to her that he wasn't home, but it took quie a bit of convincing.

There are some changes to the right hand side of the blog. Check them out! There is a second "Prayers for Rebekah" button. Also, toward the bottom is a list of "Referring Web Pages" for the last 24 hours. You might find these interesting.