Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Saturday, September 10, 2005



We are Here

Only you don't know where "here" is. We have some relatives from out of town (Jean and Mary) that are out and Grandpa and Grandma's for the day. We have been hoping so much that Rebekah would be well enough for us to get to come out. It was hit and miss all the way up until time to go but we decided to come anyway - because Rebekah said she wanted to go bye bye in the car.

Rebekah had been doing so well, eating a few bites yesterday and keeping food down. Then this afternoon she threw up everything from this morning while trying to give her a bath. At least her timing was great since she was sitting in just a diaper and on a water proof towel.

She hasn't eaten anymore but she wanted her cup with apple jacks and pretzels back this morning because Sarah was begging from her and she enjoyed feeding them to Sarah. Rebekah is really trying hard to teach Sarah how to sign "more" and "eat". Sarah has figured out that when people want her to "Say" something she should shake her hand in the air. She hasn't gotten much more down, but that is at least neat.

Trying to get ready to come out here was a trick. We had to get her food pump put into the van which meant getting an AC Inverter wired up. The pump has a built in battery but our experience is that the battery is more for moving from one place to another and that our hour plus trip to ANYWHERE and then walking around somewhere is not what it is intended for. Now we are set for long term trips in the van which, hopefully Rebekah is going to be up for. The downside is that the battery in the van was dead. The electric cooler has been left on one too many times and the battery just won't charge up right anymore. More expense! UGH!!!!!

Tomorrow Anika will come out and finish the painting of the new playroom. All we will need then is carpet and it will be ready. We still have some finishing wood work to do but that is not crucial to getting the room into use.

Please pray for a good day here at Grandpa and Grandma's and strength for the last week of radiation.

5 Shared:

At Saturday, September 10, 2005 4:40:00 PM, Blogger Darlene Schacht Left a thought...

I just prayed for those needs. Your life is so much more complicated than mine at the moment, I just can't imagine how difficult the adjustment must be. Mom and Dad, just love each other and don't let the stress get in the way of that.

 
At Saturday, September 10, 2005 4:47:00 PM, Blogger Corry Left a thought...

Our prayers are with you, as allways:-)

God's Grace.

 
At Saturday, September 10, 2005 4:48:00 PM, Anonymous Anonymous Left a thought...

There isn't a day that you and your family aren't in my prayers and that I check to see how little Rebekah is doing. Your story has touched my heart so deeply and I pray that God gives you the strength not only to make it through this but that he somehow heal's Rebekah. I know it feels at times that you are alone, but alway's remember that God is alway's there and all of us out here on the net are praying daily.

 
At Saturday, September 10, 2005 4:57:00 PM, Blogger Katrina Left a thought...

You know that you have prayers over here. Stay strong!!
Katrina

 
At Sunday, September 11, 2005 6:19:00 PM, Blogger Jenny Left a thought...

Praise God!!!

 

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