Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Friday, September 09, 2005



She's Eating (at least a little)

Mom, Rebekah and Sarah were out of the house this morning a little after 5am. Cousin Anne and her son JJ, met us at Radiation this morning to help watch Sarah. Today was a clinic day, so after Radiation was complete, we headed over to the hospital to wait.

Rebekah said she wanted to eat, so we stopped at the "Heart Beat Cafe" to see what looked good to her. She wanted a muffin, so Anne bought a blueberry muffin for her and JJ to share. Rebekah wouldn't touch it, but Sarah ate nearly half of the muffin.

Then we headed up to the Play Room where JJ and Sarah could play while Mom and Rebekah went over to clinic. We still had more time to waste, so we stayed for a while, too. Rebekah sat for a while in Mom's lap playing with the train set. She didn't have a lot of energy, but some. JJ seemed to have lots of fun playing and Anne really seemed to enjoy having Sarah fall asleep in her arms for a little while.

Her counts today are actually High. She must have been on her way up when we were in on Tuesday. The doctor didn't need to see her. We did need him to prescribe some additional patches for pain medication. So we had to get that prescription filled and another one refilled. While we waited for the prescriptions we stopped in to see Grandma C. Rebekah told her she wanted to eat, so we wandered over to the cafeteria. Rebekah said she wanted Apple Jacks cereal and pretzels, so Grandma C bought both of them for her. As I type, she is sitting on the couch with a bowl that has some of each of them in it and she is eating. She has had several of the pretzels and some of the apple jacks. She is eating them very slow and being very deliberate with her bites. I think it hurts a little and she's trying to eat on her right side which isn't nearly as sore as the left. Nonetheless, SHE IS EATING.

Her nutrition is up at the rate we were at in the hospital and she's been doing ok with it. We may bump it up a little, to get more into her. Since she is still not getting as much as "Recommended Daily Allowance" when it has to be off for 8+ hours for anesthesia for Radiation. Her weight was up from Tuesday, but still down from last Friday. Last Friday's weight was probably elevated a little from all the fluids she had been getting in the hospital. Then she wasn't keeping stuff down over the weekend, so she lost weight. Little by little, we will get some of that weight back on her.

Friend Fran (who was here yesterday), stopped by today to bring dinner. She and her husband were going to the beach and she just couldn't drive by without stopping and bringing us a meal. Thanks Fran! Sorry Rich for the gravel. Rich collects cars and wasn't thrilled with the half mile of gravel to our house. He wanted to know if the other way was less gravel. No such luck.

Rebekah has not been drooling as much the last couple of days as she had been for the last 3 weeks or so. We didn't need to give her the medication to dry her secretions before anesthesia this morning. Either her mouth isn't as sore or the Radiation is starting to dry her up a bit or a combination of the two. She did just fine without the medication this morning.

Rebekah has been coughing quite a bit today. She has gunk in her throat and some of it is being coughed up. She is not thrilled with it, but I'm sure it is helping (to get it out).

Maggie seems to be having a great time in Disneyland. If you are checking in on her, you'll have to look at the Guest Book to see the latest comments from her Aunt Kimmy about what is going on down there. The updates are there and not in the Journal. Sounds like everyone is having a GREAT time.

Please continue to pray for Maggie, Josh, and Gage.

Hope everyone has a great weekend!

17 Shared:

At Friday, September 09, 2005 4:32:00 PM, Anonymous Anonymous Left a thought...

Little bites at at time is better then nothing great to hear that she's eating a bit. :) God Bless.

 
At Friday, September 09, 2005 5:05:00 PM, Blogger Pam Left a thought...

Apple Jacks and Pretzels...bite by bite...if that is what Rebekah wants to nibble at that is what she gets to nibble at. Sounds like things are going well today and for that we are all so very thankful. Thank you Fran for bringing dinner by. Thank you Anne and JJ for your help. I would mark this as a very good day.

 
At Friday, September 09, 2005 5:13:00 PM, Blogger Alison Left a thought...

Glad to hear the encouraging news! Good times with snacks.....

 
At Friday, September 09, 2005 5:26:00 PM, Anonymous Anonymous Left a thought...

I share your joy at this being a much better week with Rebekah, than last week. It is always encouraging when there is positive evidence of answered prayers.I really pray that God continues to touch the many souls who see this diary and know God is evident in your lives.To God be the glory and the praise for all He has done and continues to do for you.

 
At Friday, September 09, 2005 5:26:00 PM, Blogger Katrina Left a thought...

Oh yeah!!! She's eating. That's fabulous. I'm so glad to hear it!!!!! Prayers continue for all of you.....and look in the mail. cheyenne send her "artwork" for Rebekah.......:O)

God Bless!!!!
Katrina

 
At Friday, September 09, 2005 5:41:00 PM, Blogger Deb Left a thought...

....just read an email from Lori --said to check the blog...Rebekah's eating pretzels!! Yahoo! We just ate a pretzel too - in honor of Rebekah!!

May God continue to fill your moments with miracles!!

Always praying...
Randy, Deb and Olivia

 
At Friday, September 09, 2005 6:20:00 PM, Anonymous Anonymous Left a thought...

Praying for all of you,
hugs too all
from missouri

 
At Friday, September 09, 2005 6:54:00 PM, Anonymous Anonymous Left a thought...

Time to give everyone a clean laugh

"Forgetting Something"
A man was on his way home with a new car, which was absorbing all his attention, when it struck him that he had forgotten something.

Twice he stopped, counted his parcels, searched his pockets, but finally decided he had everything with him. Yet the feeling persisted.

When he reached home his daughter ran out, stopped short, and cried:

"Daddy, where's Mommy?"

 
At Friday, September 09, 2005 7:14:00 PM, Blogger Darlene Schacht Left a thought...

Sounds like yummy cereal. I just hope there was a prize in the box. My kids only care about the prize, that's all that's important.

 
At Friday, September 09, 2005 9:09:00 PM, Blogger Heather/SHTEZQ Left a thought...

yeah she is eating something is better then nothing. ii guess you just need to give her what sounds good. that is a wierd combo but hey she ATE IT YEAH!!!!!

 
At Friday, September 09, 2005 9:18:00 PM, Blogger jomo Left a thought...

My prayers are still with you. May He give you the strength you need.

 
At Saturday, September 10, 2005 6:05:00 AM, Blogger JodiTucker Left a thought...

Did I mention I am still praying as are soooooooooooooooooooooo many others?....healing for Rebekah, an appetite for her, strength, sanity, and peace for Scott and Frances, help at home for you all, for Sarah's growth and continued sisterly love between Rebekah and Sarah, etc.
Thank you God that You alone see the big picture, You alone mold hearts and minds, You alone are the God of the universe, and the God of each single atom, molecule, and cell in Rebekah's body....P. S., God, thanks for the invention of Apple Jacks!!......Love to all in OR and others praying for my little cousin Rebekah, Jodi in OH

 
At Saturday, September 10, 2005 8:31:00 AM, Blogger The other me Left a thought...

What a star she is! SO happy Rebekah is nibbling at some cereal. I am thinking of you and praying for you, much love, Helen.

 
At Saturday, September 10, 2005 9:57:00 AM, Blogger steve Left a thought...

Sweet like sugar!

glad she is eating a little

 
At Saturday, September 10, 2005 12:54:00 PM, Blogger Valerie Left a thought...

The pretzels and Apple Jacks must have tasted so wonderful to her! May this weekend bring rest and healing. With prayers from Ohio. . . Valerie

 
At Saturday, September 10, 2005 1:34:00 PM, Blogger Jeff H Left a thought...

So glad to hear of Rebekah's small steps toward getting better. Slow but steady...

 
At Saturday, September 10, 2005 1:43:00 PM, Blogger Queen on the run Left a thought...

As always my prayers are with Rebekah. I hope that she continues to gain weight and to want to eat on her own too.

 

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