Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, September 12, 2005



Two Radiation Treatments Remaining

Two more radiation treatments remaining! We are nearing the end of Radiation and halfway through Chemotherapy. It is hard to believe that we have made it this far. There is still much more to go, but some steps are behind us.

Today was a clinic day, so after Radiation we hung around for our appointment. Friend Pat came with us to help keep track of Sarah. While we were getting a bite to eat in the hospital, nurse Susi saw us and came over for a quick chat. She and some of the other staff had been looking at today's schedule and they didn't think that Rebekah needed to come in today because her counts we up last Friday. I had a few things that I wanted to discuss with the doctor, so I figured it was good to come in. They usually want to see us at least once a week, too.

Her counts were still doing fine. They are down a little, but that is to be expected.

She seems to be congested (from a cold), so I asked the doctor what (if anything) I could give her for that. She said that I can give single ingredient cold medicines like benadryl or robitussin dm, depending on the symptoms.

Rebekah's left eye is pretty red and it bothers me. I don't know for sure that it bothers her, but it worries me. I asked doc about that, too, and she suggested that we get Rebekah in to see an opthamologist. We could either go to the one we've seen before or she could refer me. Once home, I called the opthamologist that we had seen before to schedule an appointment. They weren't able to get Rebekah in this week with the same doctor and since we are in for chemo next week it would be a while before we could get in. I asked if we could see another doctor this week and was able to schedule an appointment for Wednesday morning with a different doctor (but one that I have seen several times). Please pray that all goes well with that appointment and that there will be no signs of damage.

Around Rebekah's G-Tube her skin is pretty sore. We want to be very careful about infection, so I wanted to know what we could do about that, too. Doc thought it looked more like skin irritation than infection and suggested that we use a "barrier" ointment like desitin to protect the skin from any seeping.

While at Clinic, we ran into Gage and his mom. They still have decisions to make, so please pray for them. We also ran into Kennedy and her mom. Kennedy was not having a good day. Her mom wasn't having a good day either. She seemed frustrated and I could see her concern for her daughter. They could use some prayers, too. It seems to me that there are soooooo many kiddos with cancer and they all need prayers. I know that my view is quite skewed, since much of my time is spent around the cancer clinic and the hospital. Yet I know there are many families that are coping with cancer in their kids. Uugh!

12 Shared:

At Monday, September 12, 2005 4:32:00 PM, Anonymous Anonymous Left a thought...

Eva - we followed the national protocol for the number of radiation visits - 31. We had considered dropping the last 6 but decided against it. The only difference in our treatment v. the protocol was that we had one week off in the middle because of her burns and health.

-Rebekah's Daddy
www.HelpRebekah.com

 
At Monday, September 12, 2005 4:41:00 PM, Anonymous Anonymous Left a thought...

As aways prayers and huggggggs
for all, and Gage & Mom, Kennedy&Mommy too! thanks for the update ;-D
praying in MO

 
At Monday, September 12, 2005 5:02:00 PM, Blogger Heather Left a thought...

Woohoo, down to two!! So glad for you.

 
At Monday, September 12, 2005 5:05:00 PM, Blogger Cindy-Lou Left a thought...

Praying for everyone! Praise God for only 2 more radiation treatments, also! I work in a cancer clinic and 75% of the people I come in contact with each week has cancer, so I can understand that "skewed" point of view... but I still think you are right, sooo many children (way too many!) with cancer. I'll be praying for her appointment with the eye doctor as well.
In Him,
Cindy

 
At Monday, September 12, 2005 5:22:00 PM, Blogger steve Left a thought...

Sweet! Almost done with this phase!

God bless!

 
At Monday, September 12, 2005 5:23:00 PM, Anonymous Anonymous Left a thought...

Hey there, still watching,waiting and praying with you. Believing in the more in store for all of you. God Bless!

 
At Monday, September 12, 2005 5:54:00 PM, Blogger Valerie Left a thought...

You are still in my thoughts and prayers here in Ohio!

 
At Monday, September 12, 2005 6:19:00 PM, Blogger Ileana Left a thought...

Praying for Rebekah and all the kids in the hospital...and I'm thankful to hear she has only two more treatments!! Great news!

 
At Monday, September 12, 2005 6:54:00 PM, Blogger Jenny Left a thought...

Praying for Rebekah and all the kiddos. And your whole family.

 
At Monday, September 12, 2005 8:20:00 PM, Blogger JodiTucker Left a thought...

Continuing in prayer with love!

 
At Monday, September 12, 2005 9:57:00 PM, Blogger Deb Left a thought...

As for the "skewed" point of view...we still pray for all the preemie babies who are patients in the NICU where Olivia spent her first two months of life. We don't know any of those children...but understand firsthand what they and the parents experience on a moment-by-moment basis ---each moment praying for a miracle. It's life-changing and prayer-changing. I'm sure you will never stop interceding on behalf of all kids with cancer...it's become a part of you --something you will always be passionate about. See...God will continue to use you ---even after Rebekah is DONE with all this junk!!!

And speaking of DONE --YAHOO!! ONLY TWO MORE RADIATION TREATMENTS!!! ...doin' the happy dance here!

Still praying in PA!
Randy, Deb and Olivia

 
At Tuesday, September 13, 2005 7:33:00 AM, Blogger Katie Left a thought...

It is always comforting to see the end of the tunnel. Prayers abound.

Also you don't have a skewed view, you have a compassionate insight into a world that many of us never have the opportunity to see. Thank you for giving us the eyes to see it. That really does mean a lot.

 

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