Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Saturday, September 10, 2005



My Little Girl Makes My Day

Very quick to the last post, but I just had to put this up. While I was putting up the last update Rebekah came walking down the hall - 30 feet or so. Yes, Rebekah walking! Mommy was helping but Rebekah asked to come to daddy who is sitting in Grandpa's office at the computer.

She wanted to sit in my lap and see pictures of "Ohhh" (Her name for herself which is combined with being said and pointing to herself). We did something we can't even do from home (because Grandpa has high speed) and watched the video "Rebekah and Her Doggie" in the photo gallery over on www.HelpRebekah.com. Every time the doggie fell over Rebekah would say "uh oh" and point to the screen. Then, when it was over, she would sign "more" time and time again. We must have watched it six times.

Finally she reached down on Grandpa's desk and took all of his pens (3) that had the caps on the "Wrong" end and made sure they were put on the right end!

That was enough exercise that she is now completely beat and wanting to go hide in a room with just mommy but having her in my lap, watching a video with her of her, and having her enjoy it through all of the pain was so delicious.

I am SO thankful for moments like this, even when they only come in 30 second to 10 minute intervals every few days!

18 Shared:

At Saturday, September 10, 2005 5:34:00 PM, Anonymous Anonymous Left a thought...

I am so happy with you guys. I am so praising God for all He is doing. I passed out more cards and more emails today. Keeping the prayer chain moving. Love ya!

 
At Saturday, September 10, 2005 5:56:00 PM, Blogger jomo Left a thought...

Savor those moments-God is so good.

 
At Saturday, September 10, 2005 6:03:00 PM, Blogger Pam Left a thought...

Rejoicing as memories continue to be made and small pockets of normal times are enjoyed...And Rebekah sweetie, please come to my house and put the caps on the pens correctly.

Blessings and blessings and more blessings to each of your little family

 
At Saturday, September 10, 2005 7:27:00 PM, Anonymous Anonymous Left a thought...

Many more moments of blessings is my prayer for you.

 
At Saturday, September 10, 2005 8:39:00 PM, Blogger Jeff H Left a thought...

And to think, most of us would completely miss something so important, because it's so simple.

Thank you for sharing, Daddy.

 
At Saturday, September 10, 2005 9:38:00 PM, Blogger Heather/SHTEZQ Left a thought...

holy cow she is getting perky these days so glad to her and to see god is so listening to all of us and all of your needs.
god bless

 
At Saturday, September 10, 2005 9:49:00 PM, Blogger Amanda Left a thought...

how precious! now i have to go watch the video... :)

 
At Saturday, September 10, 2005 9:53:00 PM, Anonymous Anonymous Left a thought...

Thank you Lord for answering our prayers, and for each step forward Rebekah is taking. Please continue to keep your healing hand on Rebekah, Keep Mommy and Daddy strong, and continue to give them moments of joy, not just with Rebekah, but with Sarah, and with one another. Thank you for giving Mommy rest, and Daddy the moments of Joy his heart needed. Lord you are so good, you deserve all our praise, all our Thanks, Amen.

So happy to hear how Rebekah is doing.. You remain in my prayers.
Hugs to all!!

 
At Saturday, September 10, 2005 10:46:00 PM, Blogger Kathy Left a thought...

What a blessing that she was walking today, and that you were able to share some "quality" time!

God bless, your family is in our prayers...

 
At Saturday, September 10, 2005 11:06:00 PM, Anonymous Anonymous Left a thought...

God is so good. i'm so happy for all of you!

 
At Saturday, September 10, 2005 11:59:00 PM, Blogger Dorko Left a thought...

My the great, grand Father - creator of heaven and earth, lean his ear close, to hear the sounds of the joy you have shared with him, in your daughter.
Still mindful of you all and sending much love your way.
D.

 
At Sunday, September 11, 2005 3:17:00 AM, Blogger Alison Left a thought...

How exciting!

 
At Sunday, September 11, 2005 8:39:00 AM, Blogger Di Left a thought...

I swear that you don't realize what you have to be thankful for until some small ray of sunshine comes bursting through. God bless all of you!

 
At Sunday, September 11, 2005 11:35:00 AM, Blogger Jojo Left a thought...

It is so good to read about you enjoying some happy times with Rebekah. Made me smile to read about it. God bless all of you.

 
At Sunday, September 11, 2005 3:22:00 PM, Blogger The other me Left a thought...

Oh I am so happy to read this! Bless that little girl of yours!

 
At Sunday, September 11, 2005 6:08:00 PM, Blogger Jenny Left a thought...

As I was praying for you all today, one thing that was pressed on my heart was to pray that Rebekah not feel dizzy and wobbly. I pray that she will have even more moments that she wants to walk by herself and spend time with daddy laughing. I pray constantly that mommy get some true rest and that little sister is happy and content.

 
At Sunday, September 11, 2005 7:37:00 PM, Blogger Darlene Schacht Left a thought...

I watched the video and I'm just wondering, is the cat always a T.V. addict, or is it just the soap operas? The world could crash in around that cat, but he's not moving away from that T.V.

 
At Wednesday, December 28, 2005 2:05:00 PM, Anonymous Anonymous Left a thought...

There was a time when communities would seek counsel from the elders. More experience usually translated into lessons learned. Having picked up a pearl of wisdom here and there over the years, I am now able to share a thought or two. The main lesson is to never stop learning. Seeking other points of view and new ideas like visiting your blog are steps in the right direction. Finding what is ultimately important leads one to appreciate actuality, efficiency and mindfulness. Helping others to see some of the forest through the trees is its own reward. lifestyles

 

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