Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Tuesday, September 13, 2005



Rebekah Played

This afternoon Rebekah and Sarah played "Push Mommy Over", "Dog Pile on Mommy", and "Sippy Cup Pass Off" for about a half hour. Then Rebekah saw one of her toys and wanted to go get it. She seemed to want to play more, so I asked her if she wanted me to disconnect her from her feeding tube so she could go freely. She said yes, so I did just that.

For another hour, she played at her kitchen, with her sister, and then when her sister was getting something to eat in her highchair she wanted to sit in her booster chair (on the floor) right by Sarah. She wanted some goldfish like her sister, but after eating one decided she wanted to lay down and have her feeding tube connected back up.

Several times, she wanted to go look at her new room. I told her we would do it later and when friend Ginger stopped by, Rebekah showed her the new room and the trees and bunny and cat and butterflies... She had a good time showing it off.

Speaking of Ginger, she brought out several meals for us, including tonight's dinner. What a blessing! Thanks so much Ginger (and everyone who helped make them).

It is great to see Rebekah expressing some of her desires. My little girl is coming back! I am so happy!

Tomorrow is the last day of Radiation! Hip Hip Hooray! Tomorrow is also when we will see the opthamologist about her eye. Please pray that the day goes well.

Rebekah spent part of the morning throwing up, so Mom wasn't sure how the day was going to go. After that episode, she seemed to do fine. Of course, it was just after giving her some medications (one of them being her anti-nausea med). I'm not sure how much of them stayed down, but didn't want to double her up on any of them either. So we let her be and she seemed to do ok.

17 Shared:

At Tuesday, September 13, 2005 6:54:00 PM, Anonymous Anonymous Left a thought...

I am so happy to open each diary page lately with good news waiting. So much to rejoice about. What a wonderful God we have. Such a blessing to be surrounded by the caring family of God,those seen and unseen.Grace and Peace to you.

 
At Tuesday, September 13, 2005 7:12:00 PM, Blogger Pam Left a thought...

Tears are running down my face...our Rebekah is playing and enjoying life and making up for some days of not feeling well. What a blessing, what joy to have a game of Dog Pile on Mommy, I can't think of a better way to spend the day....Mommy I am so happy that your little girls loved all over you today...my heart is bursting with happiness.

Ginger, thank you for being there, you are an angel

 
At Tuesday, September 13, 2005 7:41:00 PM, Blogger Valerie Left a thought...

Hey, what a wonderful day, doing "normal" things. Good luck tomorrow, and I shall continue with the prayers!

 
At Tuesday, September 13, 2005 8:19:00 PM, Anonymous Anonymous Left a thought...

This is so awesome to hear!! I pray that many good days will continue and for tomorrow to go well. caron

 
At Tuesday, September 13, 2005 8:20:00 PM, Blogger steve Left a thought...

this just makes me smile ear to ear. What a great day for you guys. Good is so good Scott. I passed a sign about 15 minutes ago on the side of the road that read:

"A tested faith is an enduring faith"

This just makes me think of you and how much God is working through your family.

You all will have an enduring faith through this.

God Bless!!

 
At Tuesday, September 13, 2005 8:21:00 PM, Blogger steve Left a thought...

Good is so good?

GOD is so good!!

much better

 
At Tuesday, September 13, 2005 8:41:00 PM, Anonymous Anonymous Left a thought...

Praise God! What a wonderful report. Seems a long time coming, but finally the last radiation treatment. Oh, hallelujah!!

You all continue to be in our prayers.

 
At Tuesday, September 13, 2005 9:20:00 PM, Blogger jomo Left a thought...

Great news-still praying

 
At Tuesday, September 13, 2005 10:04:00 PM, Anonymous Anonymous Left a thought...

this is very good news ;-D
praying for a very good day!!!!!!!
hugggggs from Missouri

 
At Tuesday, September 13, 2005 10:37:00 PM, Blogger Heather Left a thought...

So glad to see that she's up and about with energy. Only one more to go - YEA!!

 
At Wednesday, September 14, 2005 2:53:00 AM, Anonymous Anonymous Left a thought...

It's so good to hear that Rebekah is feeling better and feels like getting up. It just goes to show how very remarkable she is and how great the power of the Lord is ! Keep up the good work ! We will be praying for you.

 
At Wednesday, September 14, 2005 3:56:00 AM, Blogger Ileana Left a thought...

One more day! Hurray!

This is really amazing. When I popped in (after reading Steve's blog) I didn't know I'd come to care so much for someone I never met before. Rebekah has been on my mind and in my prayers since that first day. This site is the first one I check in the morning and the last one I read at night. It's great to hear (and see) how well she's doing...that she played, wanted to walk around and see her room, that she's smiling). I thank God for every day we get to spend with our children. I don't want to take one day for granted.

Peace, love and joy...
Ileana

 
At Wednesday, September 14, 2005 4:06:00 AM, Blogger Jenny Left a thought...

God is so amazing. Providing with friends and family to care for you and support you. I am still praying for rest for Mommy and Daddy. The kind of true rest that comes when you know your baby is in perfect health and you can stop worrying about this treatment or that medication. Praying for that day to come quickly.

 
At Wednesday, September 14, 2005 6:26:00 AM, Blogger Alison Left a thought...

Thank You Dear Heavenly father.....

 
At Wednesday, September 14, 2005 8:43:00 AM, Blogger Katie Left a thought...

Thank you Lord for moments of joy like this.

 
At Wednesday, September 14, 2005 11:52:00 AM, Blogger Marla Bean Left a thought...

Just wanted to drop a note. I am here. I am reading, every day and praying every single day. I don't always leave a comment, but I am rejoycing for your moments of normalcy.

 
At Wednesday, September 14, 2005 1:10:00 PM, Blogger Robin Left a thought...

Yay! She played and she loves her new room!!! Yay for happy times!

 

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