Tired, Painful and Breaking our Hearts to Watch
Rebekah continues to not feel well. It just breaks our hearts to see. We have to fight to get her to take any of her meds. It is heart wrenching.
She has mucositis (an inflamation in her mouth) that is currently running all along the edges of the front half of her tongue. It looks pretty gross and I'm sure doesn't feel well at all. The Radiation Oncologist said to expect it to get worse before it gets better. It is a sloughing off of the dead (Radiation is killing them) skin cells on her tongue and will likely spread to other areas of her mouth.
She is sleeping most of the day. She doesn't have much energy. She spends most of the time in her bed or in Mom or Dad's arms. On our way home from the hospital today (and it was a clinic day, so we didn't get out of the hospital until after 11:00 am), we stopped at friend Mike and Tara's house to pick up Sarah. They had been watching her. Once we stopped the car, Rebekah wanted her shoes and socks on. Tara came out with Sarah, but Rebekah still wanted to go in. So we went in and saw Emma and Benny (ages 5 and 2) for a little while. She walked part of the way in and once inside walked a little and played for a few minutes. It was great to see her "want" to walk and play. She didn't seem to have much energy for it, but it sure was a delight to see her "want" it. We have to recognize the little blessings like that each day.
Rebekah's white blood counts and ANC were starting back up. The doctor wants us to give two (Friday night and Saturday night) and maybe three (Sunday night, too) more GCSF shots. She asked that we call her over the weekend to decide whether Rebekah should get a shot Sunday. Her platelets were getting low (30x10'3 normal is 140-440x10'3). Doc didn't think she needed platelets unless I wanted to push for them. Since I really hadn't been seeing any bruising, it didn't seem necessary to me.
Dinner is ready, so I'm going to get this posted. Hopefully I will have more time later to write more. Thanks SO MUCH for all the prayers and comments and spreading the word. It is uplifting. I know God is looking after us. We rely on him greatly. I don't know how we would do it without Him.
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Wow what a day, i'm very sorry. Again i come to pray. I pray for strength and wisdom. I pray that the lord will give you rest and that he will give you peace, and a goodnights rest. Lord i come to you i know that the deivl wants to take her away from them but i pray in your name GET YOUR HANDS OFF! I want to thank you lord for what you have done for them. I pray that this hard time will bring them even more closer to you that this time will show them what you can do. I pray for Scott,Frances,Sarah and Rebekah, to each of them i pray strength onto them because this is such a hard time. Lord i pray for the parents i know that they are having such a hard time i pray that you will just help them to relax and to be together. I pray for Sarah this is very hard for her even if she doesn't understand what is going on she still needs your confort. And most of all i pray for Rebekah she's in so much pain and this is no way to live i just pray for a peace over her body from the tip of her head to the tip of her toes, that every part of her will be a peace. Thank you lord. In your name we say Amen!
Still with you.
The Prayers are unceasing..
Found you through Jayleigh's site. My tears right now can not even come close to what you are going through. But know that I am thinking about your little girl.
praying.
Love and kisses from the UK
X
Hello Frances, Scott, Rebekah & Sarah,
It's been a while, but every blog is read and emotions shared as we shed tears with you and then take joy in whatever good situations arise some days. I have come to realize how often God seems to bring about a better day on the heels of a "badder" day, thus not giving you more than you can bear.
May He continue to be your strength and shield and Rebekah's comforter and healer. May He watch over Sarah and all the grandparents as they watch over her. Thank God for family, friends, neighbors and all that have come to your side with many forms of sustenance and blessings.
Our thoughts and prayers are always with you
Muchlove in Christ,
Aunt Nancy & Uncle Paul
God bless. Praying without ceasing.
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