Not Getting Any Better

This week is just not getting any better. We have been hoping and praying that Rebekah was going to deal with the radiation better.

If you have been reading the last couple of days you know that Rebekah has been having a hard time with her mouth, throat and sores. Today she had her radiation (a general anesthesia) and then came back up to her room for a few hours and went back down to surgery (another anesthesia) for them to stick a scope down her throat and look to see what is there. The only answer that they have after looking is "this is normal for radiation" and it must be laryngytis which she could have for the rest of radiation (3 1/2 weeks).

It is coming down to us having to make a choice between an IV type feeding tube with a chemical (TPN) that would be constantly fed to her through her central line using a pump that she would have to carry in a back pack about 18 hours a day. The second alternative is a feeding tube down her nose (an NG tube) that we would feed her a nutritional supplement (like Ensure) through regularly. The third alternative is a feeding tube directly into her side (a GT tube) through which we would feed the same type of stuff as the NG tube.

We are going to physically look at all of the options this afternoon or tomorrow. Hopefully we will have a few days to make a choice.

Obviously this is wearing on mommy and daddy and we are both pretty beat down. Pray for a miraculous healing and return of appetite for Rebekah to be able to avoid one of these choices and pray for us to help make the right choice as/if it becomes necessary.

Also we could sure use some help Saturday afternoon and evening at the hospital getting packed up and Saturday night/Sunday at home.

It goes without saying but this is not how you like to see your 3 year old.