Some Good, Some Bad

Rebekah woke up about 9:30 and ate some milk (spooned from her bowl of cinnamon life). She didn't keep her morning medicines down and got very agitated. She had only bites of lunch and went down for a nap about 12:30.

Mom and Sarah went to Mom's Aunt Lucile's 70th birthday party. Lucile seemed to be in good spirits.

When Rebekah woke up from her nap, she wanted Mommy to come and change her and get her up. Since Mommy wasn't home, Daddy told her that she needed to get up and have something to eat and then they could go see Mommy. Mommy and Sarah headed to cousin Michael and Jacob's 2nd birthday party and met up with Daddy and Rebekah there. She got lots of love from Grandma C, Grandma A, Grandpa, Aunt TT, Uncle Mark, Mommy, and Daddy. She really seemed to enjoy the pasta salad and had quite a few bites. She was also doing a pretty good job of drinking water from a sport bottle.

She started to wear down and kept saying she wanted to go night night. We tried to give her some tylenol which she spit right back out. We did give her some Zofran for nausea and vomiting. I figured that by giving it to her before the rest of her meds, she might be able to keep them down better.

Finally, we were ready to head toward home and bed. Once home, she said she wanted to eat and she wanted goldfish. She sat in Sarah's chair, opened her container of fish and put some on her tray. Then she proceeded to throw them on the floor. Mom left her in the chair while giving her the evening meds. She took them pretty well although she was getting sick to her stomach and spit just a little bit up. She is not wanting her teeth brushed. For the last few days, mom has been putting her flouride toothpaste on by finger - and hoping that she doesn't bite.

When we changed her diaper before bed, she had some stool. That is good. It is at least a little bit of a relief. It was pretty firm.

Here it is past 11 pm and Rebekah is awake. She was fussing, although it was hard to hear her with her being so hoarse. Mom took in some water. She has drank quite a bit, but Mom will have to take it away in a few minutes since she can't have anything before anesthesia in the morning.

Rebekah is looking pretty frail. It is obvious that she has lost quite a bit of weight. She has some scratches on her forehead that look pretty bad - her skin seems to be broken pretty easily and then it takes a while to scab up and begin the healing process. She's pretty banged up. Any little scrape or bruise just takes a while to heal and disappear.

The last few days have been really bad. It is taking a toll on Mom and Dad as well as Rebekah. Sarah seems to be mostly unphased by it right now. The next few weeks are going to be really tough. Please Please Please continue to pray for us. Without your prayers, I don't think we would make it. It is only by God's grace that we have made it so far. It is certainly not our own strength.