No title comes to mind.

Mommy started the night with both girls in the room. That lasted until about 11:30pm when she called daddy asking for help. Sarah was fussing and screaming and Rebekah was being upset, hitting herself and throwing up. Daddy ran over to the room and brought Sarah back to the trailer. From that point both girls did real well through the night.

Rebekah spent most of the morning sick to her tummy. At 11:00am friend Nancy showed up to help take care of the girls and mommy headed straight to the trailer to get a fresh change of clothes. It seems Rebekah didn't think that mommy looked nice in a clean shirt and decorated it for her...

Early this afternoon we all met with the doctor to discuss feeding and nutrition issues. It looks like sometime next week we will probably start Rebekah on some additional nutrition through her central line. This is not as good as through a tube into her tummy (either through her nose or straight through her side) but a lot less invasive. We will see how that goes for a while and then make a decision from there. The nice thing we learned from that conversation was that we don't have to start it today.

The hard to take that we gleaned from the conversation is that this is not to get us through radiation but long term. It is fully expected that when the long term effects of the radiation start taking place Rebekah will not be able to open her jaw or eat enough to survive for a while - and this is the hard part - a while being a year or more. The preparation for us was to expect to have a tube in her side for several years at least. wow.

In addition they have prescribed morphine for the pain. She has not taken it yet and they do want her to take it sometime today to see how she reacts. In just a couple of days we have gone from "no just take tylenol" to them telling us that we should be giving morphine. I don't know what to say except that it is just another example of how things are going.

Sorry if the last couple of postings have not been how great things are going and all up beat. We wish even more than you do that they could be.