A very VERY long day
We woke up around 5 and mommy and Rebekah were at the hospital by 6am for radiation. They were home in time for a short nap at 8:00am.
Rebekah said she wanted daddy's eggs - and then wouldn't eat them. Typical. We went through the day with Rebekah wanting something and then not eating it. What she has gotten into her system today is very sparce - 1/4 cup of milk spooned to her from a cereal bowl. 1 teaspoon of ice cream. 3 gold fish. 2 icee pops. The biggest meal of the day has lasted for the last 1 1/2 hours - and we are up to about 40 cherrios. If you do the math it is not very sustaining. This took about 4 to 4 1/2 hours of sitting in the high chair. We started medicines at 6pm and went right into eating and it is now 9pm. (And people wonder why we need help around the house, or help taking care of the girls, or help with laundry, or....) Thank goodness Grandma M was here to help with some of this.
We are at clinic tomorrow for blood work and other exams; I think we will have to start tube feeding.
During medicines Rebekah (or the swabs with medicine on them) kept touching her lips and the skin over the sores kept comming off. We feel like we are experiencing the biblical boils, sores and leopersy all in one. If we weren't so focussed on trying no to freak her out we would be pretty grossed out!
On a very good note we have seen a lot of support today, or at least a lot of people reading the blog which lifts us up quite a bit. I think today is either the highest or the second highest traffic day. It would be a dream come true if EVERY day got as much traffic as today.
We also heard that the drywallers (who didn't come last week while we were in the hospital) should be able to get done part this week and part next week. It will be SO nice to be able to finish that room off.
There are a lot of things in the works to get Rebekah's story out to the public so more and more people can be touched by her and her needs can be made known to more. Please tell everyone you know about this blog and about www.HelpRebekah.com Use the flyer (also linked to the left) if you desire.
Thank you for all of your prayers - they have literally made the difference between us making it through another day or not. Please keep them up.
Tomorrow at 5am begins another day.
Share a thought or prayer: 3 Comments
3 Shared:
My prayers are with your family. Just want you to know, though I have only commented one other time, I read about Rebecca during the week, and pray for her and your family each and every day. I have shared her story with others , and I know they are keeping you in prayer as well. We are here, we care, we are lifting you up.
Dear Lord,
Please be with this family in need. Hear their requests and bring comfort to them.
Please be with Rebekah, God. Help her to feel well enough to eat and to enjoy her day. Help her parents. Give them strength. Give them your peace through this trying situation. In Your Name Lord, Amen
Please know I will be praying for you.
Your story was passed on to me by a dear friend. In my office, a state away from your family, my thoughts and prayers are with you. It's times like these where I find that all I have is faith to fill the gap between what I understand and what God has planned. May He bless you, help maintain your strength, keep you brave and give you the fortitude to carry on with spirits high.
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