Update
How's that for a title? I guess I am just not being too creative right now.
Yesterday was a long day, again, in so many ways. Rebekah and mommy were off at 5:00am and home about 8:30am. The anesthesiologist giving Rebekah her general is having problems with maintaining her airway with all the leaking/oozing sores in her mouth and throat (sorry for the picture) and wants the doctor to try giving her some medications that will dry that up. This is difficult because one of the side effects of radiation is burning out the salivary glands so Rebekah already has very little saliva to help swallow and this medicine will likely affect that too.
The home health nurse brought out Rebekah's TPN which is nourishment to be pumped into her central line. The stuff comes premixed in a huge milk bag - 1.3 liters to be exact. Just before use we have to add several other drugs into the bag. She has to have the bag of fluids, a pump about the size of a large digital camera, and the battery about the size of a laptop battery connected to her 19 hours a day. It is in a backpack but, unfortunately for Rebekah and other Dora fans, that BACK PACK BACK PACK is too heavy for Rebekah in her frail state. We are sure hoping it does some good to get her renourished. She was down from 16+ kilos to right at 13.
Rebekah slept most of the day which should be good, except she then could not sleep at night. She didn't want to get up, but she couldn't sleep. Mommy slept in her room to try and help her through the night. Actually slept is not an accurate term in that there was never more than an hour of straight sleep. Mommy is pretty beat down right now.
When I first started to write I was going to say that I wanted to tell you good news but couldn't think of any. That is just not so. Every week, even every day gets harder and harder and we feel like we are at the end of our rope. This week has been the hardest but we have made it through it. Why? Because of you all and prayers and uplifting support.
In addition to a couple of people dropping off some food and offering help (thanks Tami and Fran), this week has had lots LOTS more people on the blog and praying for Rebekah. This is in big part to Steve and his mission to share Rebekah with the world. Seeing the traffic double and having a couple of people order bracelets, make a donation and/or offer help at www.HelpRebekah.com have been HUGE inspirations to us this week. It is amazing the uplift you get to take a moment to put a bracelet in the mail to someone. Anyway, my point is that you all have been the good news and have kept us going. Thank you and PLEASE don't let it drop off!!!!
Share a thought or prayer: 39 Comments
39 Shared:
Dear God,
I ask that you bring your miraculous healing power to the life of Rebekah, that you comfort and give hope to her family and friends, that you repair and strengthen her body and bring your peace, the one that surpasses all understanding, to her and her family. Lord, I pray that you give this family a testimony to share with the world about the miracle they will witnessed in Rebekah's life. There is no diagnosis that is beyond prayer and healing. I pray that your presence is forever with Rebekah and her family, that they never walk alone without you. I will share the good news with everyone as she heals. I will put it on my blog. In faith and with all my love for you and those you love, I ask these things in Jesus' name.
Amen.
God is good. He woke me this morning with Rebekah and your family on my heart. Know that you are surrounded by prayer.
Lord, You know our hearts, You know our needs. We know You are good, we know You are love. Work in this family's life. Nothing is beyond Your power. Thank you for this precious girl, thank you for this amazing family. May Your peace, strength, and lovingkindness fill them daily.
God bless you. Rebekah and your whole family have been on my mind constantly and in my prayers.
I prayed just now what Katie wrote. God loves you all.
I pray especially for Mommy and Daddy, that you get true rest, and soon.
Father I just ask you to be with Francis especially right now. I ask that you give her comfort and rest.
We know that You are big enough!
Father You are HUGE!!
and we praise Your name!
Our God is good. Thats something we can hold on to, even in the craziest of situations.
Praying that God will move in such a powerful way - and that little Rebekah will grow up to be a witness to God's power in her life.
- Ranjit
Lord, I agree with Maria and I am praying for her! And we will pray as a group too. That WAS very hard to read--Steve linked me to here. I have a 3 year old little girl too, so it made it that much harder. I ask the Lord to "get you through and give you peace that can only come from Him" to get you through. Give little Rebekah comfort and ease the pain in her little body. Do a miracle Lord!
I was told of Rebekah by Steve. I thought I would come over and show my support. Rebekah is a such a special and beautiful girl. God Bless you all. I will be praying for you and I will put posters up on the notice boards at work. Luv Kristy
Praying lots for your precious daughter and for you. Steve has rallied the troops to pray and it's wonderful to see so many people adding her to their blogs and uniting on her behalf. Bless you all.
(I put her on my site too)
Hi, I'm here via Well Woman. I'll be thinking of Rebekah and will pray for her. Miracles do happen.
God bless little Rebekah. My prayers are with her and you, her family. I will add her to my prayer roll and ask my visitors to pray for her too.
Keeping you all in my thoughts and prayers!!!!
Lifting payers on behalf of your family and Rebekah.
Just found your blog and website and I will be praying for Rebekah and you, her parents, as well as your support group.
May God's presence be very real to you at this time. He loves you all so much and holds each of you in His arms.
Steve asked me to pray, bless his heart. I have also posted a request at my site which many believers read.
I was here about two months ago when things seemed to be looking up and I thought all was well. I was saddenned to learn this past week that things were not going so well. I will also be praying again in a moment.
Hey!
Steve sent me! Know that ya'll will be in mine and my families prayers. I'll be praying for ya'll to have strength to handle whatever comes your way...sleepless nights & days at the Dr's office!!
DonnaV.
I'm praying for you!
We continue to keep Rebekah and her family in our prayers and in our hearts.
Prayers will be sent every day and every night from this day onward.
I will most definitely keep your darling Rebekah in my prayers. May God keep you and yours in His loving hands and bring peace, rest, and healing. My blog doesn't get read by too many, but I will link to you. Every little bit helps. God bless.
The link for this page now has a special spot on my page. Do you have a picture that you can send to me and I can post it there also.
My heart goes out to you and your family. We will begin praying. Our God can do anything! Lord, give them strength, courage, patience and peace as they continue to meet each day. Fill this family with your grace. In Your Son's Precious Name I pray. Amen.
Steve pointed me towards yall- believers in Nashville are praying for your daughter.
Our God and Father-
We ask you to hold little Rebekah in your merciful hands and heal her body and her spirit. We know that you love and cherish her as your own and that you want good things for her, to prosper her , and not to harm her. We ask that you guide the physicians hands, but even moreso, we ask that you give her healing that only you, the Great Physician can give. Let her family be at peace in you as well and give them rest so that they can continue to be strong in leaning on you.
In your precious Son's name-
Amen
Father, hold this little angel tight, allow her family to feel your physical presence. I pray for healing, for strength and for renewal to her little body. Father, we thank you for the work you have already done in her and we thank you for your continued healing touches of love and completness.
Bring your Spirit to comfort, thank you Father, thank you.
As the father of five children, I understand your desperation and your heart's cry.
"Father, I ask for Your touch upon Rebekah and her family. You, above all other's know what it is to have a Child who is hurting, and I ask Your mercy and Your supernatural touch upon this family. I give You praise now for the answer, and I trust You for the results, in Jesus' name. Amen.
May God comfort you as a family and restore perfect health to Rebekah.
this is my first time to your site, i know your heart aches for your little girl, I will pray and I agree with all the prayers here according to Matthew 18:19 which says if any two on earth agree as touching anything, it will be done.
Our God is able to do abundantly above all we ask or think! I will check back and I will add your family to my prayers. God Bless!
Lord, i pray for this precious girl. i ask you Lord to keep her in your loving arms. heal her, dear God, from all these ailments. you said in your word that by Your stripes, we are healed.
bless this family, oh God, that they may find comfort in You. help them live each day with joy in their hearts knowing that You are always with them for guidance.
Father, i lift up to You this family and rebekah.
we bring back all the glory in Your mighty name, Amen.
Lord, Thank you for all you are doing for Rebekah. I pray Lord that you will continue to comfort this family, and to show Yourself with the abundant love, strength and grace only You can provide. You are so Glorious, Amen.
Prayers going out...
Thoughts and prayers coming your way from England. I have only just found your blog. I will spread the word as best I can.
Joe Cowboy sent me. Prayers added for your precious baby.
Lots of love and kisses from the United Kingdom
X
My husband and I would like to offer words of encouragement and sympathy, but it is difficult to find words.
We will pray for all of you, that God may give you strength as a family and especially, healing for your little girl.
I will put a link up on my site as well.
God's Grace.
I'm saying a prayer for you and my heart is breaking. I can't imagine... not at all. May God give you all strength.
Darling Rebekah and her family are certainly in our prayers! May God's choicest blessings of strength, healing and peace be with you during these difficult times.
Your names are also submitted to our church congregation to pray for.
My heart goes out to you, as I've just now found your site and discovered sweet little Rebekkah. How it hurts my heart to know what all you're going through, though! I have a 3 yr. old granddaughter, so it really hits home, to know that anything can happen to any of us at anytime on this earth we're journeying through.
But GOD is holding you and walking with you, and you are such a marvelous testament to His profound grace in times like these. I'm praying that He will heal and bless, that His GREAT BIG love will pour out and comfort and keep you close to Him. So many people love you and care. So many people are praying!!
Love & grace & peace & strength to you,
Vicki
i'm sitting here trying to imagine what your life must be like. what you go through emotionally and physically to care for rebekah. the toll it must take on your relationship with your spouse, and your relationship with Sarah. is she old enough to understand what is happening to Rebekah? i imagine that rebekah must be very tired. she probably wants a "normal" life like other little children her age. and yet this may be what she knows as "normal." i see the pictures of her in a hat, in the hospital, getting a haircut, and she is all smiles. how blessed she is to be so young and relatively unaffected by what society says about body image.
know that you are being bathed in prayer. i'm lifting Rebekah up, and your family, too.
You guys have had a really hard week and i just pray that things we begin to get better, again i pray for strenght,healing, and a peace over your family. I pray for Rebekah,Frances,Sarah,Scott, i pray that you will keep on helping the through out their hard times and that you'll show them lite when there is only darkness i pray that God will be your eyes and that he will show you the way. I know that things feel really hard right now but you have to keep faith in the lord and his people for he will come to thee. Everyday when you get instead of looking at it has just another day think of it as i great day that god has brought to you, keep things positve and you'll see what begins to happen. I pray life into your home and that if the deivl hss his hands Rebekah I say in the lords name GET YOUR HANDS OFF SHE'S NOT YOURS! SHE IS GODS CHILD! You are in my prayers everyday, i pray life into your home and always remember everyone has a perpouse. I believe that Rebekah has one and whatever it maybe it has been done. One more thing i pray for frances this isn't an easy thing to go throught but i pray that god will give you the strength that you need to get throught everyday life! Well all need Gods helping had and i think you need him alot more then you think. Amen Thank you Lord! God Bless Each of you!
Take Care ;)
God bles your little angel. My daughter Sarah was also on TPN I know the dangers and the hassle of it. I lived through central lines, ostomy bags and feeding tubes. If I can be of any help to you please please don't hesitate to ask. Please know that we are all there for you and will be sending out our thoughts and prayers.
God bless you and your daughter.
Rebekah, By Dear Jesus' stripe, you are healed. (Isaiah 53:5)
You are not going to be healed, you are healed.
Cuz if Jesus bore it, you don't have to bear it, dear little gal.
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