Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, August 22, 2005



Short Update

Rebekah is a room that she will likely be in for a while. They have put her on a fentanyl (pain medicine related to morphine) pump that has a constant drip plus a push button for extra bursts of pain med. They are trying to figure out what to do with the sores. She needs a g-tube feeding tube put into her side and, because her other blood counts are still really good, now is the time to do that. They are trying to schedule surgery time for that.

Daddy is madly trying to pack up the house and move to the hospital. We were not planning for a hospital stay for a while and the trailer was not ready. Our bad - we knew better. Grandma's are trying to figure out how to juggle baby Sarah and we have not seen her since Friday which is really difficult. The best that they can say right now is "plan for a long stay." As bad as her condition seemed, this is not something we expected or were ready for.

More later when/if we get situated.

14 Shared:

At Monday, August 22, 2005 1:09:00 PM, Blogger Queen on the run Left a thought...

PLease take care of yourselves.
Praying for all of you.

 
At Monday, August 22, 2005 1:29:00 PM, Blogger Heather Left a thought...

Please know that you're all in my thoughts and prayers. Let us know if we can do anything for you.

 
At Monday, August 22, 2005 1:48:00 PM, Anonymous Anonymous Left a thought...

I can't hardly see to type for crying and praying. God be with you all.
Aunt Nancy

 
At Monday, August 22, 2005 1:51:00 PM, Blogger Jojo Left a thought...

Just came across this blog. My heart goes out to you. I know what it is like to have a child who has medical problems.

Father - Thank you for Rebecca and her family. Please bless them with all they need. Lord, we do not understand why children have to go thru such things - but we can rest knowing You are in control and nothing will happen to Rebecca that is not for her good. That is still a tough one for us to figure out Lord. Help us when we doubt, when we get angry and most of all when our hearts are so full of pain and despair. Help us to always remember that you love precious little Rebecca even more than we can fathom. Thru Jesus I pray - Amen

 
At Monday, August 22, 2005 2:09:00 PM, Blogger Jenny Left a thought...

God bless all of you. Still praying here for you folks constantly.

 
At Monday, August 22, 2005 2:24:00 PM, Blogger Katie Left a thought...

Know you are surrounded by prayers.

 
At Monday, August 22, 2005 2:52:00 PM, Anonymous Anonymous Left a thought...

My tears and prayers continue to flow, as I keep my eyes on the blog, my ears to the phone and my heart towards our God! Thank you all who come to this site and who add this to your own. Thank you for all of the prayers that lift my family up. Scott had wanted me to write about how Rebekah has affected me...I can't- it hurts too much...God knows-He understands what she and we need...I give it to Him!
I wish I could be there to hold her, but know that God is! I pray for comfort for Scott and Frances!
With much love,
Aunt TT

 
At Monday, August 22, 2005 3:21:00 PM, Anonymous Anonymous Left a thought...

i came through a link on darlene's page just to let you know i will pray for this brave little girl

 
At Monday, August 22, 2005 3:42:00 PM, Blogger Jeff H Left a thought...

Prayers going Rebekah's way.

 
At Monday, August 22, 2005 5:35:00 PM, Anonymous Anonymous Left a thought...

Lots of prayer time headed to the coast today. God is with you.

 
At Monday, August 22, 2005 7:59:00 PM, Blogger Cristina Left a thought...

Thank you so much for sharing your lives with us readers. We NEED to be reminded that we are not created to be 'islands'. We need each other. Thank you for being humble enough to share your struggles openly. You have a precious little girl.

Praying in Minnesota.

 
At Monday, August 22, 2005 9:30:00 PM, Blogger Deb Left a thought...

Having not read the blog since Friday, my heart has been especially heavy and burdened for Rebekah all day today. In fact, the Holy Spirit stopped me several times today - interrupting my daily tasks - prompting me to pray for all of you.

And now...as I read the updates, my heart breaks. I have been crying out to God on your behalf. In the midst of it all - He remains on the throne. He is in control. He continues to be Jehovah Rapha - our healer. He will continue to sustain and walk with you through this trial.

I continue to stand in agreement with you for Rebekah's healing...and will be relentless in my prayers for her.

Olivia wants to give Rebekah "a really big hug" because she "has a booboo" --but she also says, "Mommy, Jesus is going to take Rebekah's booboo away and make her feel all better."

We are praying.....be strong in the Lord and in the power of His might --for His strength is made perfect in our weakness.

In His Love ---forever praying,
Deb, Randy and Olivia

 
At Monday, August 22, 2005 9:40:00 PM, Anonymous Anonymous Left a thought...

still praying...

 
At Monday, August 22, 2005 9:43:00 PM, Blogger Cheryl Left a thought...

We continue to pray for you.
Thank you for taking the time and effort to blog your experiences so that we can continue to pray for your specific needs.

 

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