3rd Post In A Day...
...you guys sure have us inspired! We have not seen hits like today ever before and I must tell you it is very uplifting.
Warning - this is going to ramble a bit. We are REALLY tired right now.
Rebekah is finally calmed down. The truth be known, Rebekah is drugged down. But based on how she was acting all day this is the first "rest" she has had in a long time. She has been given a BUNCH of different drugs that each act on a different part of her body to help her calm down and help the pain go away. When she wakes out of her slumber she is fighting, hitting herself, hitting mommy or daddy or whoever else is around. But then when she goes back to sleep she looks so peaceful.
There is no chance of getting anything down throat now and the we are scheduled for a g-tube to be put into her tummy sometime tomorrow. The TPN was providing some nutrition but not enough. The g-tube will allow some food to be put into her tummy where it and the intestines can work and it can also be used for some medicines that only come in pill form. That will be a full blown invasive surgery sometime tomorrow (Tuesday) afternoon.
We still don't have any better idea (other than "a while") as to how long we might be here. We are pretty much expecting to be here through the beginning of next week. It will be a good chance to see what daddy forgot in trying to pack the trailer today. He had to work a full day and get it all ready - something it was not. Right now he just grabbed everything and things are kind of a mess.
We are crying a lot right now. It is really difficult. I don't know how anyone can help but it is tough seeing your little girl like this. I wanted to post another picture of Rebekah today but frankly it is just too bad.
Grandma M brought Sarah down to the hospital this evening. Sarah walked all around the halls and even up and down an incline - a first. Daddy got to take her to the playroom and play games with her and that was pretty cool.
Most cool of all was when she had to leave. Rebekah was awake and in mommy's arms but being very abusive to herself and to mommy - until Sarah came over to her. Rebekah reached out and signed "nite nite" on Sarah's face and then said the only word's daddy heard her say today (other than "ya" and screaming), she told Sarah "I Love You". We cried.
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6 Shared:
I love you all very much-I'm so happy that Chi Chi is such a bright light for Rebekah! God knew she needed her! I pray for restful sleep for all and Almighty healing tonight! May tomorrow's surgery be successful in allowing Rebekah to gain strength!
With lots of love,
Aunt TT
It's 1:40 in the morning and the prayer vigilance is still going. I'm supposed to be praying right now, but I wanted to pray part of it here:
Dear Father,
She is your special child, your beautiful Rebekah, and I will do your will by praying and trusting in your divine wisdom. She is yours, and I put her in your care. Bring comfort to her. Let her say I am well in you, and let her parents say we have peace in you. Let the river flow. Amen.
There is a special bond with sisters.
God please give rebekah the strength she needs and please give those around her the strength and rest to do what they need to do to help Rebekah the most.
A candle will be lit tomarrow evening at 7pm with a prayer going out for strength of heart, mind, and body for Rebekah and all her caretakers.
God surround this family with angels of healing light.
I lift you up to Abba in this painful road you are all walking on.
Lord, we can cry out only to You. We know you are present in this child's life, You love her more than anyone. Your heart breaks at her pain, this child you have created, You have knit together with joy and love. Father please if it be your will, heal this child. But more than that, Lord love her with a love that surpasses even her knowledge, surround her with Your peace, draw her into Your embrace. Lord let her never doubt that her Father in heaven created her, holds her in her pain, and surrounds her with His love. May the same peace and presence of You surround this famliy. Lord, provide strength when there is none left, provide faith when all hope seems lost. Lord we cry out to You and we know You hear. Lord please.
Your Family is still in my prayers!
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