Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Wednesday, May 04, 2005



Wednesday Afternoon - some small developments

I have been reminded by a media person friend of our that people are relying on coming here and seeing something and that "no news" is not acceptable - a "good" reporter would "make" news if there isn't any...

Well, I was about to say that I would resort to creating news because things had been going along without any change. Rebekah had been eating and generally happy. Unfortunately that is starting to change as it appears that she is developing some sores in her mouth. This is expected and we have 'magic mouthwash' prescribed to help deal with it but the trick is how to get her to use it. Can someone please explain to me how to explain to a 3 y/o with learning disabilities exactly how to use mouthwash and then get her to do it?

Tomorrow is another blood test day so we are praying for that - along with the mouthsores. We will update you tomorrow sometime.

And finally, a note on comments. Many MANY M A N Y of you have been leaving some great comments and emailing us privately. We (and others) are very much encouraged by them and please keep them coming. We don't have time sometimes to respond to them all personally but they are very well received and are being kept for a book for Rebekah. I think it would be even more of an encouragement to put who you are, where you are and how you are related to or heard about Rebekah as the variety of sources of the comments and email is amazing. We don't even know who about 10% of the people are!

3 Shared:

At Wednesday, May 04, 2005 9:04:00 PM, Anonymous Anonymous Left a thought...

Make the mouth wash a game. Try starting with water or Kool Aid and put Cheerios in the sink. The game is to wash the Cheerio down the sink with your spit. Never know, it may just work! Our thoughts and prayers are with you here in Minnesota (your rally friends!

 
At Wednesday, May 04, 2005 11:08:00 PM, Anonymous Anonymous Left a thought...

Try painting the sores with Gentian Violet, using Qtips. About 25 years ago, a friend's daughter had severe sores in her mouth and couldn't eat. This cleared them up in no time, and is probably available at local pharmacies.
Our prayers are with you!
- Jo Petersen (Betty Crowthers' daughter)

 
At Thursday, May 05, 2005 8:00:00 AM, Anonymous Anonymous Left a thought...

Scott, try and *show* her. Do it and make it a game for her to mimic you. If she doesn't get the mimic thing, start out by doing something easy like sticking out your tongue or waving around your arms... then try the mouthwash. Calling it "magic mouthwash" is a great idea. Bet you have to craft a lot of "buy into this" language, huh. Take care all!!! LOVE YOU GUYS.

 

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