Saturday Morning, April 30, 2005

It's 7:51am and all the girls are still sleeping - that is a good thing!

Rebekah finally started to get her appetite back last night and drank a couple of cups of milk, some juice and had a medium bowl of beef stew (something she never used to like). She really had not eaten anything more than a a few ounces of yogurt since Wednesday and it was getting pretty scarry. Let's hope this morning continues on the trend.

She continues to have a lot of medicines to take at home including her shot. Yesterday was the first shot and she did remarkably well - but she didn't know what was coming. Let's see how today goes. Last night she was pulling at the tubes on her central line, showing them to daddy and asking for a "drink". Her tubes are her "friends" and she likes to help take care of them. The hospital staff calls a central line a "buddy". They will get a drink this morning after she gets up. Yesterday we bought a 16" 2 tray tacklebox just to carry her daily medicines and some dressing changes if we go out; something else to go with us everywhere :)

This weekend is more of a chance to try and get things in order so that Monday we can start all over again. Hopefully this week will be just regular appointments and no over night stays. We will let you know.

Thank you so much for the wonderful comments and encouragement. They are obviously read by us and many more. Thank you Steve Sporre for the suggestion of a counter. As of midnight April 29th, there is now one counting the number of hits to this blog. If someone who knows advanced html code will help me, we can get it moved from the bottom of the page up into the left column. And most of all THANK YOU for all your wonderful help and prayers - it is all SO appreciated.