Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, April 18, 2005



A little bit of research...

Our oncologists have suggested a research site called www.curesearch.org It is quite conservative but does have a lot of good information on it.

Many of you have asked about how you can help and we don't really know right now. We came across this on the curesearch site and it does make a lot of sense to us right now:

Ideas for Family and Friends

Family members and friends often feel concern and compassion for a child with cancer and their family, but are uncertain about how best to reach out and help. A vague offer of “Call me if you need anything” may not be very useful because it requires that the overwhelmed parents consider their needs and articulate them. Parents need a lot of support, but in these situations they simply may not have the time or energy to call. The best support can be a concrete offer for a job or service. When possible, it may be useful to coordinate a group of helpers, so that tasks can be divided and the family’s needs may be covered. There are lots of ways to be truly helpful.


The site goes on to provide lots of really helpful things. You can go directly to this part of the site by cutting and pasting the following into your browser (it seemed too long to include here):

http://tinyurl.com/acqgx

1 Shared:

At Tuesday, April 19, 2005 8:23:00 AM, Anonymous Anonymous Left a thought...

Great idea. I think we all can think of something that we can do to help you and your family out Rebekah. We are so glad to hear that you had some good news yesterday!

Robyn et al

 

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