Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, April 18, 2005



Monday Morning

It is now 10:45 am on Monday morning and we don't know anything new. Waiting for results and to be told what to do next is the most difficult thing in the world.

We had a tough time when Rebekah came home on Saturday. She continued to bleed A LOT from the surgery site (inside her mouth by her left lower wisdom tooth). They went from the "inside out" to take parts of the tumor around her jaw bone and the muscle. It took lots of ice packs and gauze to keep the bleeding under control. When she was calm, which thankfully was most of the time, she would be okay. She spent most of Saturday afternoon on Mom's lap. She went to bed about 9pm as a very tired, worn out little girl. She ate/drank pretty much nothing on Saturday.

At 3am Sunday she woke up crying and wanted to drink. She drank 2 sippy cups of milk and wanted more. She got more water and it took about 1/2 hour of consoling to get her back to bed.

Sunday was pretty uneventful. The picture on her "profile" was taken Sunday morning. Compare this to the Easter picture on our family website and you can see what is happening to the side of her face.

She was getting close to being back to her playful little self but it is obvious that things are dragging on with her. She liked the company she got, especially the cute little "bekah bear" that her friend Emma made for her at build-a-bear (she slept with him in her arms Sunday night). Sunday she drank almost a 1/2 gallon of milk but did not eat much until Sunday evening when Uncle Charlie made some really great cookies (thank you to Daryl and Ginger and kids for the cookie dough!). Rebekah could not get enough and we let her have all she wanted!

This morning she is up and doing okay. She is pretty tired but doesnt know that much is wrong. Mom and Dad, on the other hand, are on pins and needles waiting for results and directions. Again, waiting seems to be the hardest part.

PLEASE PLEASE PLEASE continue your prayers for all of us. We desire a miracle.

1 Shared:

At Monday, April 18, 2005 2:00:00 PM, Blogger Caronc Left a thought...

I heard about Rebekah through a friend of a friend and constantly have your little girl in my prayers.

 

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