Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Friday, April 22, 2005



Friday Evening, April 22, 2005

We are back home after two very long grueling days. Most important, Rebekah is doing pretty well. She has two "IV" tubes coming out of her right side just "outside" her breast and under her arm. She has been leaving them alone very well. She is very tired as are we all and she is showing it with outwardly hostile and unacceptable behavior.

Thursday night we did not sleep at all and we are at our wit's end right now. If these last two days are any sign of what is coming up starting Monday (4-6 days in the hospital every 2-3 weeks) I am not sure yet how we are going to make it. We will, but I am not sure how.

It is becoming increasingly obvious that one of the biggest helps that we will need is helping to take care of the girls when we are at home. This is especially true right after coming home from the hospital so mom and dad can get some semblence of our lives put back together and then get some rest. It is also clear that we may need some help with baby Sarah while we are at the hospital (especially sleeping with her). We will have our camping trailer there so there will be at least a private place to get away if at all possible.

Many many many of you have expressed a desire to help. As I started above - taking care of the girls during and right after is one of the biggest areas that you can. Whether it be that, or anything else that you are willing to do I ask you to please contact ***Mindy Hughes, a very good friend a volunteer coordinator for us at 503-459-3523***. Update - Mindy has been overwhelmed with A LOT of work (we're thinking about you Mindy). Please now contact Robyn Rogers at 503-357-5181. Please let her know what you can do, when you can do it, and ????

And please please please keep praying for Rebekah and us.

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