Back Home Again, Thursday

...at least we think it is Thursday :)

Yesterday, the last day of Chemo went much like the day before. Rebekah did remarkably well and was pretty chipper throughout the day. Again, she loved getting pulled around in the wagon. If you want to do anything when we are down in the hospital and you are not sick, come pull Rebekah!

Grandma C spent the night in the room with Rebekah last night while Frances, Sarah and I again slept in the trailer. We got up real early this morning and relieved Grandma C at 5:45am. Rebekah slept until 7:00.

We then started going through all of the home medical care and drugs that are going to be needed. The pharmacy bill alone was well over $300 just to make our co-pay. Many people came by today to help us learn how to do each step. We are going to have to do dressing changes that are traumatic to Rebekah as well as daily injections (some into her central line and some into her skin like a diabetic might have to inject insulin). That all starts tomorrow morning.

Rebekah stopped eating today and has started to develop even more of an attitude, kicking, hitting and just generally not being happy. All she has eaten today is about 3oz of yogurt. Grandma A is here now trying to get Rebekah to eat something but when you even ask her what she wants to eat she just screams. She screamed the whole way home in the van.

We thought we were getting a fair amount of rest but, yet again, did not realize how much things had been dragging on us until we got home and just crashed. Luckily the girls also slept for a little bit. We are really beat coming home from the hospital!

Assuming no feavers or obvious infections in the next 4 days, the next visit to the hospital is Monday where she will have blood drawn and we will get our first look into how her red cells, white cells and plasma are doing. Whether we have to stay at the hospital depends a lot on those counts. Our next chemo visit will be approx. 7 days long starting on May 16th. Until then they have told us there is a 50/50 chance that we will be at home or be at the hospital - it all depends on how Rebekah is doing.

Please pray that God continues to provide the strength for everyone to get through this and most important, that He will reach out and miraculously remove this tumor from her body.

And also please let us know in the comments or email what you want to see in these updates.