Sunday Morning, April 24, 2005

It has taken two days at home to get caught up to just being behind. Rebekah is having a hard time getting to sleep at night but sleeping quite well once she is asleep. Last night when she was screaming trying to go to bed daddy laid down with her and she stopped crying, calmed down and reached over and put her hand on his shoulder and kept repeating "da da" as if to say "it will be okay daddy." Yesterday mommy tripped and fell and Rebekah put down her toy and came running to mommy asking if she was hurt. Rebekah's mothering insticts are phenominal! During the day she is her energetic, playful, mostly normal self. We have had a few visitors this weekend and she is enjoying the attention and sharing her room and toys with anyone who will play.

We have a large box of medical supplies to help take care of her central lines at home. In that box are some syringes with saline solution. Everytime Rebekah sees a syringe now she lifts up her shirt, points to her central line tubes and uses her sign language to sign "drink" or "thirsty." She is a really smart girl and knows a lot of what is going on.

Today, Sunday, will be difficult for mom and dad as we are going to get her beautiful hair cut. Other than having her bangs trimmed, she has never had a hair cut and, when wet, her curly hair straightens out all the way down to her bottom. We are going to try and save as much as we can. Grandma is taking us to a very accomplished well-known stylist to help with this endeavor. We will try and post some pictures later this afternoon.

I very much hesitate to even start trying to thank all of the people who have been such angels in our lives but I do have to make one very special mention. Kathleen Duling from Banks Fire has been here many times, made meals and most recently spent Friday night here to help take care of the girls allowing Frances and I to get an unprecedented 7 hours of sleep. Thank you Kathleen, and thank you all of you who are helping in so many ways. I pray that God will bless you all 10x over.

And speaking of prayer, a new client just wrote to me: "Regarding your daughter, remember to pray not just asking for healing, but fully expecting his healing. Remember the lesson of the mustard seed, and James’ instruction to ask and keep asking. God does answer prayer." I can't add anything to that except Amen.