Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, May 02, 2005



Monday Morning Starts Another Week

This weekend was fairly uneventful. Rebekah has been doing well, taking her medicines and shots quite well and over all acting like a normal little girl. She is sleep significantly longer that she had before during the night, usually 12-14 hours.

Yesterday was really fun as grandma and grandpa came and took her for a walk outside for a long time. Rebekah would ALWAYS love to stay out longer. She definately enjoys being outside.

The only "signs" of anything that we are seeing is a rash across her chest that I believe is a reaction to either the bandaging or one of her medications. The girls are all on their way to the hospital right now to have blood drawn and labs run. This is our first blood test after chemo and this will tell us a lot about the next few days/weeks. If her red blood cell or plasma counts are down she will need a transfusion. If her white blood cell counts are down she might have to stay in the hospital to assist with avoiding an infection and/or treating with continuous antibiotics. She goes in for blood tests every 2-3 days when not in for chemo - a 75 mile round trip!

While waiting for the blood tests to come back (several hours), Frances is going back to the floor where we go for chemo and going to fix some of their computers - there is a donated lounge that has a couple of internet terminals in it that are not supported by the hospital and those computers had a couple of small break-downs (beat up keyboards mainly). Since we had the extra parts laying around I thought that was a good use of them. I have to admit we were warned by one of the nurses not to let ANYONE around there know that we knew anything about computers :)

Special thanks need to go out to our friends Mike and Tara who, with their two little ones, came and scrubbed out the camping trailer so it is really nice and ready to go next time. They spend quite a few hours and it looks (and smells) brand new inside! Thanks Guys.

For now, keep up the prayers for GREAT blood counts!

2 Shared:

At Monday, May 02, 2005 8:47:00 AM, Anonymous Anonymous Left a thought...

Hi Scott&Francis,
All of you, especially Rebekah, are in our prayers. It is so wonderful to hear that her response to chemo is somewhat mild.We really miss her here at school. I talked with the school nurse. She shared that our program can provide services to Rebekah even while she is receivng chemo if your doctor approves it. We are sending out a letter today telling families that many of the children in class have compramised immune systems and so all children with signs of illnes in any form need to stay home. So, if you are open we would love to have Rebekah attend on the days that work best for her and you. Also on Tuesday and Thursday mornings we have a nurse in the classroom if that would make you feel more comfortable. We will be calling Minday and many of us do want to help in some fashion. God bless you and take care of all of you.
Jennifer Pena and all staff here at Poynter

 
At Monday, May 02, 2005 9:21:00 AM, Blogger JodiTucker Left a thought...

Praying for great blood counts!!...Love, Jodi and OH Tuckers

 

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