Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, May 23, 2005



An unremarkable day

Well, not much happened today. Amanda was with us much of the day Sunday (including our trip to the Emergency Room), spent the night and was here much of the day today. She was a great help!

We checked in with the doctor's office this morning and found out that we will plan on having Rebekah's Central Line replaced when she goes into the hospital for the next round of Chemo. We had figured that it would either be early this week or in preparation for the next round since her counts will be dropping this week and bottoming out towards the end of this week or first part of next week and any infection can be life-threatening when counts are low. It looks like they will have to draw blood with needle pricks for the next two weeks. I'm not looking forward to that, but that's where we are at.

It is not uncommon for children to pull out their central lines. We're not even sure how she did it. She was talking about her booboo needing a change (which seemed strange). I thought I would change her diaper and see if she had a rash or some other sort of booboo that needed attention. That's when I found the Central Line completely out. I panicked a bit, yelled for Scott, checked her incision site (to make sure I wasn't seeing any bleeding which I wasn't), had Scott put a call into the on-call doctor and changed her diaper to get ready to leave. We rushed around getting a few things packed (in case we needed a little time at the hospital) and were ready to go by the time the doctor called back.

Today was pretty uneventful. Both girls played well, napped well and had ate well. Tomorrow we go in for blood counts.

Keep the prayers coming. I know prayer is working. There could have been serious issues with her central line, but there weren't and I'm sure that is because of the blanketing of prayer.

4 Shared:

At Tuesday, May 24, 2005 12:01:00 AM, Anonymous Anonymous Left a thought...

Dearest Rebekah, Sarah, Scott and Frances,

They that hope in the Lord will renew their strength, they will soar as with eagles' wings; they will run and not grow weary, walk and not grow faint.

Isaiah 40:31

May you all feel God's strength each day!

 
At Tuesday, May 24, 2005 3:37:00 AM, Blogger JodiTucker Left a thought...

Dear OR family,

Indeed, prayer will most definitely continue!

Love, Jodi and family in OH

 
At Tuesday, May 24, 2005 2:56:00 PM, Anonymous Anonymous Left a thought...

Dear Rebekah, Frances, Scott, Sarah

Thank God for an "unremarkable Monday"! Sunday was quite enough.
Thank God for Amanda!
Thank God there was no bleeding at the Central Line incision site -
"Rebekah's booboo"!
Thankful the girls played, napped and ate well Monday!
Thankful for God's hand always responding to the tremendous blanketing of prayer coming from around the country giving stength to all.

Much love, thoughts and prayers are continually with the whole Oregon family.

Paul & Nancy Adams
(Grandpa - Papa Brent Adams' brother and wife in Ohio)

 
At Tuesday, May 24, 2005 5:33:00 PM, Blogger steve Left a thought...

GOD IS HUGE! I will say it over and over and over! I was with Mark and Tiff when you guys called about her pulling out her tube. We prayed and both Mark and I just felt peace like everything was just fine. I know that God just has such a vail of protection around you guys. I just know that everything is going to ok. He is so good!

You have some severe "prayer warriors" out here spreadin' da love!

Steve

 

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