Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
____________________________________

Tuesday, May 17, 2005



Mom's Perspective for Tuesday

It has been a full day in the hospital. This time, it is a different set of chemicals that are administered, so we're trying to figure out how what to expect. This set does not have the same risk of mouth sores as the last one, and thankfully the sores only lasted for a few days. Also, with this set, the nursed are not having to check in on Rebekah every hour (like they did last time), so sleep might come a little easier.

Rebekah has done well today. She had lots of visitors and took a good nap. I think she was pretty tired after getting up early yesterday, no nap and going to bed late (not to mention the hour that she was awake during the night).

Lolly and her son Gunnar came and took Rebekah for a wagon ride and over to the Play room where they helped her with creating a painting (one of the Child Life activities for the day). Robin brought Mom and Dad lunch and shared her egg salad sandwich with Rebekah which Rebekah loved. Grandpa stopped by and loved on the girls. Mom was able to get a nap, thanks to Brad and Dinah who were able to get Sarah to sleep while Rebekah took her nap and hung out with all of us dozing. Not the most exciting company for them, but the rest was great! Today was a good day of rest for Mom. Thanks to everyone who helped with that! Tonight, Uncle Chuck is staying with Rebekah so Mom and Dad can get a little better sleep. Hopefully Uncle Chuck will get decent sleep (although often interrupted), too.

Rebekah's face seems to be improving. She is opening her mouth much more than I've seen for a long time. Praise God! Her appetite was decent today, although she was picky about what she wanted to eat. She didn't seem to want to drink much, but she is getting IV fluids, so that is to be expected.

As always, your prayers are appreciated. They are working. We feel blessed to have so many people caring and praying for our family.

1 Shared:

At Wednesday, May 18, 2005 9:00:00 AM, Anonymous Anonymous Left a thought...

Thank you so much for continuing to keep up the blog. I check it everyday so I know how to target my prayers. May God's hand continue to be on you all.
Love in Him,
Jo

 

Post a Comment


Thank you from Rebekah...

Back to Rebekahs home page...