Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Sunday, May 08, 2005



The Weekend Wrap Up

As you might have read a few posts ago, we had to take off to the hospital unexpectedly Saturday afternoon. Rebekah woke up from a nap with a high (102+?) fever. Anything over 100.5 is really dangerous to someone in her condition.

When we called the doctor he told us we had to go and that we should plan to be there 48 hours +. We were not quite ready to go "on a moments notice" (something that won't happen again) and about 45 minutes later we were out the door with the trailer in tow and everything 4 of us need for a week (including my office) along for the ride.

We got to the hospital about 5pm and they started taking blood for tests. Fever is so critical that they actually start heavy doses of anti-biotics before they do a full patient work up and she had them in her within 30 minutes of hitting the front door.

The first blood tests came back and the results were "unacceptable" so they did them again late Saturday night. Again the results were "unacceptable" so they did them again Sunday morning. On ALL THREE tests Rebekah's white counts and her immune fighting ANC rating were above the levels for a normal healthy NON CHEMO patient. In fact they even stopped us from giving her the white count boosting drugs this morning. I will leave it up to each reader to determine whether they believe that the drugs we were giving her "all of a sudden" did 200% of what they are supposed to do over time or whether God answered the prayers of so many of you that were praying specifically for this result. It is pretty clear to us that the later is more likely.

As shown in the picture below, Grandma C and Grandpa came out today this afternoon to help with Rebekah. Grandma C stayed with her while Grandpa and mommy, daddy and Sarah went out to eat lunch (thanks Grandpa). Then Grandpa pulled her around/walked with her for several hours. After they left daddy did the same. Then this evening Aunt TT came and did more of that. Rebekah is SO happy when she is out walking or getting a ride in the wagon. If we are here and you want to do something to help for a few hours (she won't let you do it for less!) please please please (if you are not sick) call us and then stop by and learn every hallway of this hospital.

Rebekah was feeling so well and the blood test results were SO positive that they are talking about letting us go home earlier in the day tomorrow, Monday. Normally we need at least 48 hours of blood cultures to make sure that some infection isn't growing. In fact there was some discussion today that we might even have gotten to go home today at 24 hours - but the oncology doctor put a stop to that discussion pretty quick just to be safe.

Late this morning was the haircut shown below. I won't go into it much except to say that it was quite tramatic for daddy - and just difficult for Rebekah. We did video record the whole thing and there will be video clips us somewhere soon.

This hurry up go and hospital living is difficult on us. Daddy is tired and mommy is exhausted. It was a very tough Mother's Day for mommy. We are very thankful for those of you that, whether we are here or at home, are available to help with watching the girls so that we can get a break. Please keep those offers coming as we are only a few steps into this long journey.

And most of all, please keep praying for miracles. We have seen several all ready and, as stated above, we truly believe God does answer those prayers.

1 Shared:

At Sunday, May 08, 2005 11:40:00 PM, Anonymous Anonymous Left a thought...

It was truly my pleasure to love on my sweetie and to have HER show ME around the hospital. Every person that she passed she had to stop, smile and wave to. She is so tender and loving! God is using her in so many ways. He is amazing and almighty!

Rebekah's new do is fabulous! She is so cute and reminds me of my hubby (her Uncle Mark!)! We love her dearly and we are praying that her tumor goes bye bye as Rebekah says!!!

Sleep tight, Rebekah, Sarah, Mommy and Daddy!

With love, Aunt TT

 

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