Friday Evening - the end? of a long week

Another long day and this has been the end of a long week. It is looking like we will be going home tomorrow but we cant be sure until we are on the road home.

Rebekah is doing really well. She continues to be very happy when she can be out and running around or someone is taking her out for a wagon ride. She has not been getting sick at all (maybe because she gets drugs every 4 hours to stop the nausea?) and she generally is not showing any signs of this wearing on her any worse than generally being cooped up in one place all day every day. The blood that showed up a little bit earlier this week seems to have stopped. She is now done with her 5 days of chemo and on the last 24 hours of straight saline type fluids just to make sure she stays hydrated and the chemicals can move throughout her body and not get concentrated in any one place. The rash she started to show last night appears to be a yeast type infection and is responding well to the topical ointment being used.

That is about it for the Rebekah update - the rest is kind of a mommy and daddy update.

Mommy and daddy are run down. Mommy has had two pretty solid days in the room with just a few breaks (thank you to those who have come down). Mommy is standing up under it pretty well but is tired. Because Grandma M is spending the night with Rebekah tonight mommy, daddy and Sarah are all out in the trailer together tonight. It is 10pm and Sarah has been asleep for about an hour - that does not give us great hopes for the rest of the night...

I don't know why but this has been a really tough day for daddy. Mommy did most of the care today and I stayed in the trailer getting some work done but did come take care of Rebekah during lunch while Grandma M and mommy got to go down to the cafeteria for lunch. Rebekah just laid in my lap and arms and we rocked on the rocking chair for almost an hour. I just sat there and cried. And then this evening I was there for about 4 hours and had tears in my eyes just about the whole time. Again, Rebekah seems to be doing fine and I am not sure exactly why I am being so affected right now.

As said, tomorrow we go home. We do have someone who is coming later in the evening to spend the night (THANKS AMANDA) but if anyone wants to come help us out in the afternoon and/or early evening it would be really helpful. Just getting home and getting everything in is tough and, as experience tells us, that is when we kind of "hit the wall".

At this point we are hoping on a good weekend at home and then hoping to make it through the week with Rebekah's counts going down. Last time was tough and they said it will get progressively tougher as her immune system has to go through this another time, and another, and another.

Pray for counts, spirits and energy to all stay high.