Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Thursday, May 19, 2005



Thursday - another long day

Mom is typing here, so this will be a little longer of a post. We thought it best to warn everyone up front.

It has been a long day, but then they are all seeming to be long these days. Rebekah seemed to do pretty well. She had bouts of energy and bouts of cranky (mostly due to over tired). When she was cranky, mom was able to get her to rest (or sleep) and afterward she was in a much better mood. A visitor would come and she would perk right up. Both girls seem to light up the room whenever a new visitor comes in. They will bring smiles to many faces during the day.

Yesterday, we had visits from a Physical Therapist, Occupational Therapist and Speech Therapist, although the Speech Therapist didn't get a chance to work with Rebekah because she was sleeping at the time. They try to assist patients while in the hospital to encourage growth. Since Rebekah was receiving Physical Therapy and Speech Therapy before the onset of Cancer, I think it is great to get a little assistance while we're in the hospital. And it gives Rebekah a little break each day. Again today, each of the therapists showed up and both the Physical Therapist and Occupational Therapist played and worked with her. Unfortunately, the Speech Therapist came at bad times and it didn't work out. They try to come every day or two while we're in the hospital.

She has a little bit of a rash on her chest today that we're not sure of the cause. It could be an allergic reaction or it could be a yeast infection. Doc decided to treat it for a couple of days as if it is yeast and see if there is improvement. If not, then we'll treat is as if it is an allergic reaction. She had a similar rash a few days after her first round of chemo which eventually went away on its own. It is not overly concerning, but something we wanted looked at.

We had several visitors today. Grandma C stopped in briefly this morning and then came back to spend the night with Rebekah. Grandpa showed up for a little while this evening, too. Grandma A came for a little while this afternoon and early evening. Friends Mel and Linda brought mom lunch and spent some time with the girls and took Sarah for a walk. Rebekah slept much of the time they were visiting. Friends Mike and Tara and their kids stopped in to help. Since Rebekah was sleeping, they took Sarah for a walk and tried to put her to sleep, but she wouldn't cooperate. Their daughter Emma had seen the "yellow brick road" in the children's garden at the hospital, so she came dressed as Dorothy complete with red shoes and Toto. She looked adorable.

Rebekah has been doing a good job of sleeping through the vitals checks, diaper changes and medication administration during the night (at least during this stay). Praise God for that! When mom has spent the night in the room with both girls, there hasn't been as much trouble with one girl waking the other up. This makes the nights much easier (which makes the days easier, too).

There is probably more to tell, but I can't think of it now.

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