At The Hospital - Waiting

Here we begin the waiting game again. This is WAY too similar to our first set of scans when we were first trying to have Rebekah diagnosed. Same scheduling screw ups and everything. Only this time we don't see to be as frantic and upset about every snafu. Maybe because we have been here 10 months of our lives and are "just used to it."

We left home right around 6am and got here just after 7am. We went right to check in and they checked us in (3 minutes) and then told us nobody gets to Nuclear Medicine until 8am to give Rebekah her radio active injection. Ugh. While we were waiting Debbie came and got Sarah for the day.

At about 8:30 we got our injection and headed upstairs for Rebekah's hearing exam. "You are not scheduled today... but rather Wednesday..." UGH! And we were then told the Audiologist doesn't get there until 9:30am. UGH UGH UGH! Luckily she came early and even found a way to fit us in. Only to say she was not happy with the results (moderate to significant loss) and wanted to know if we were ever going to be under a "general". IN TWO HOURS!!!! So she called nuclear medicine and got it set up...here she comes... Well good and bad news. Right ear is fine. Left ear is untestable and we have some issues to work through with an ENT.

After what was supposed to be our audiology exam we were suppsed to go to X-Ray and Panorex before back to Nuclear Med for the bone scan and CT scan at 11.... Ya right. At 11 they still had not come and got us from the waiting room (same waiting room for all) so we just up and left and walked down to the nuclear medicine testing room ourselves. Funny, but they were waiting for us they just never told anybody down in the waiting room that. Little things like knowing NOT to wait but get in their face really help.

Right now we are waiting while she has the bone scan and the ct scan. It should take about an hour or two. They nurse (Sue - who we have had many different times from the very beginning and is WONDERFUL with Rebekah) is going to try and see if she can push through the x-ray or the panorex while Rebekah is still sedated. She said they are in the same area and she may "just not leave" until it is done. Sue is totally AWESOME!

On top of all of this we have to go try and replace our bed which we don't have any money to do. Mommy mentioned that the waterbed had a leak last night. That was kind of an understatement. I bet you didn't know you could use gas tank epoxy to seal a water bed. Well it mostly worked although we were afraid to sleep on it so we spent the night on the couch in front of the wood stove. Had it not been after such a frustration and messy clean up and only 4-5 hours before we had to leave for the hospital it might have been romantic!

We are trying very hard to stay positive at the beginning of what will prove to be a difficult week. (I have now retyped most of this update 3 times...). If we don't we won't be able to make it through. Please pray for us and for Rebekah's tests to all come back clear.