Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, February 06, 2006



At The Hospital - Waiting

Here we begin the waiting game again. This is WAY too similar to our first set of scans when we were first trying to have Rebekah diagnosed. Same scheduling screw ups and everything. Only this time we don't see to be as frantic and upset about every snafu. Maybe because we have been here 10 months of our lives and are "just used to it."

We left home right around 6am and got here just after 7am. We went right to check in and they checked us in (3 minutes) and then told us nobody gets to Nuclear Medicine until 8am to give Rebekah her radio active injection. Ugh. While we were waiting Debbie came and got Sarah for the day.

At about 8:30 we got our injection and headed upstairs for Rebekah's hearing exam. "You are not scheduled today... but rather Wednesday..." UGH! And we were then told the Audiologist doesn't get there until 9:30am. UGH UGH UGH! Luckily she came early and even found a way to fit us in. Only to say she was not happy with the results (moderate to significant loss) and wanted to know if we were ever going to be under a "general". IN TWO HOURS!!!! So she called nuclear medicine and got it set up...here she comes... Well good and bad news. Right ear is fine. Left ear is untestable and we have some issues to work through with an ENT.

After what was supposed to be our audiology exam we were suppsed to go to X-Ray and Panorex before back to Nuclear Med for the bone scan and CT scan at 11.... Ya right. At 11 they still had not come and got us from the waiting room (same waiting room for all) so we just up and left and walked down to the nuclear medicine testing room ourselves. Funny, but they were waiting for us they just never told anybody down in the waiting room that. Little things like knowing NOT to wait but get in their face really help.

Right now we are waiting while she has the bone scan and the ct scan. It should take about an hour or two. They nurse (Sue - who we have had many different times from the very beginning and is WONDERFUL with Rebekah) is going to try and see if she can push through the x-ray or the panorex while Rebekah is still sedated. She said they are in the same area and she may "just not leave" until it is done. Sue is totally AWESOME!

On top of all of this we have to go try and replace our bed which we don't have any money to do. Mommy mentioned that the waterbed had a leak last night. That was kind of an understatement. I bet you didn't know you could use gas tank epoxy to seal a water bed. Well it mostly worked although we were afraid to sleep on it so we spent the night on the couch in front of the wood stove. Had it not been after such a frustration and messy clean up and only 4-5 hours before we had to leave for the hospital it might have been romantic!

We are trying very hard to stay positive at the beginning of what will prove to be a difficult week. (I have now retyped most of this update 3 times...). If we don't we won't be able to make it through. Please pray for us and for Rebekah's tests to all come back clear.

16 Shared:

At Monday, February 06, 2006 1:00:00 PM, Blogger steve Left a thought...

praying for clear tests!

 
At Monday, February 06, 2006 1:26:00 PM, Anonymous Anonymous Left a thought...

will be praying, Lord please put your loving arms around this family , hold them, thank you Lord.
Amen

 
At Monday, February 06, 2006 1:31:00 PM, Blogger MAK Left a thought...

I pray that you get lots of good news and lots of rest tonight.

 
At Monday, February 06, 2006 2:33:00 PM, Blogger Paula Left a thought...

Dear Father in Heaven,

I pray for only good test results. That Rebekah will be totally healed. That someone will provide mommy and daddy with a new bed. Thank you for giving them some measure of peace during this difficult time. Hold them close to you. In Jesus name I pray. Amen.

Love and hugs and prayers from Georgia,

 
At Monday, February 06, 2006 5:27:00 PM, Anonymous Molly Left a thought...

always thinking of you and praying for a miracle.. now both for darling Rebekah AND for that darn water bed! *smile*
We will all be on pins/needles until we read your posting on the test results.
Know you are not alone - we are all here with you in spirit and in prayer.
hugs - Molly

 
At Monday, February 06, 2006 5:48:00 PM, Blogger Eva Left a thought...

I'll be with two of my prayer partners tonight and we'll pray together for you for strength this week.

 
At Monday, February 06, 2006 6:11:00 PM, Blogger JodiTucker Left a thought...

Thinking of and praying for you so often throughout the day!! Any student named Sarah/Sara or Rebekah/Rebecca is a cue to pray!
(I do not have any Scotts or Frances this school year.).....Love to you, Jodi

 
At Tuesday, February 07, 2006 12:06:00 AM, Anonymous Tamra Mattox Left a thought...

Frances and Scott,

I will be praying for peace for you and clear scans for Rebekah this week.

 
At Tuesday, February 07, 2006 3:58:00 AM, Anonymous Tammy Left a thought...

I just wanted to let you know that all of us out here on the web who visit Rebekah's site continue to pray not only for her but for your whole family. Keep the faith !

 
At Tuesday, February 07, 2006 4:38:00 AM, Anonymous Dale and Leslie Mickley Left a thought...

We too will be praying for good news. Prayers also going out that your days will become more "normal" what ever that may mean LOL. Prayers also for strength, peace and courage to get through all that is a head of you ! Prayers for all the people that help,reach out and in so many different ways touch your lives to help you get through each day !! My thanks to them.

Dale and Leslie Mickley

 
At Tuesday, February 07, 2006 6:28:00 AM, Blogger Dawn Left a thought...

Praying for you all, that you might find peace & comfort in all you must go thro' this week.
May you know the love of your heavenly Father, and the kindness of friends & family as you go thro' this with Rebekah.
Father as we come before you in agreement, & trust in your word we ask that you would bless her & grant her healing now, in Jesus name.

 
At Tuesday, February 07, 2006 6:42:00 AM, Blogger Danny Sims Left a thought...

Thank God for Sue!!

 
At Tuesday, February 07, 2006 8:34:00 AM, Blogger Mike&Mari Left a thought...

Molly said what I am thinking and feeling. Mike and I are praying for clear tests, and will be anxiously awaiting the news. Molly said it best, you are not alone! Rebekah has brought so many together through this, that I just have a feeling God is going to use her in a powerful way, I'm sure we'll all be amazed at His grace and power! Amen to that, and love to you all.

 
At Tuesday, February 07, 2006 8:40:00 AM, Blogger thequeen Left a thought...

God please let those tests come back clear. Goddess please watch over all and everyone and keep things on track so that the results can be given as quickly as possible.

 
At Tuesday, February 07, 2006 8:45:00 AM, Anonymous renegadebilly Left a thought...

Prayers are going out to you and your little girl. Much love to you.

 
At Wednesday, February 08, 2006 10:08:00 AM, Anonymous Teresa Left a thought...

Prayer for continued outpouring of faith and strength on you all. Praying and waiting with you.

 

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