Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Thursday, February 02, 2006



The Waiting Begins

Wow, you guys are awesome!  Thank you for the comments and support.  As if to over-emphasize the point that you are there and can comment there was some glitch on the email receive side of things and every comment you all made was emailed TWICE to us today.  Ok ok, we get it  (  Janice, no apologies necessary, this blog is about what true feelings are.

Rebekah, Sarah and mommy took off about 8am this morning for the hospital and returned about 1pm or so.  Rebekah’s counts were doing okay but we don’t know for sure whether they are still going down or coming back up.  Therefore the girls are going back to the hospital tomorrow for an unscheduled visit to check counts again and compare them to today.

What mommy did learn about, however, is next week’s scans.  Here comes the waiting and the unknown.  Right now we are scheduled for A LOT of tests.  Bone Scan, CT Scan, Audiology Check, Chest X-Ray and Panorex are ALL scheduled for Monday.  Thursday is MRI, ECHO and EKG.  Friday is a PET scan at a different hospital.  All of these require a full anesthetic and are a bit tough on Rebekah.  Mommy and daddy also have it tough in the waiting.  This is where we find out if the last nine months have made any improvement.  No matter what happens we know that the last nine months have bought us nine months.

I, daddy, am confident in the results that will come back but at the same time am afraid of being too confident.  I am reminded that many of the other children have been acting and seeming their best right up to their final moments.  It is difficult because no matter what we feel, we truly don’t know where things are going.  But that said, PLEASE understand that there is not a single parent out there that really knows for sure what tomorrow will bring for you and your child.  For us the odds are against long term survival and that makes a huge difference in how much we appreciate every waking moment right now.  For most of you the odds are in favor of “long term survival” but that should not change how you view every moment with your kids.  Please love them today like there is no tomorrow – and then do it again tomorrow and the next day.

And if that were not enough, tonight is ER.  It is a show we have come to enjoy but I am not sure we even want to watch it tonight as it is about ALS (Lou Gehrig’s Disease) and is said to be very depressing.   Rebekah’s Grandfather and many of her maternal relatives died of ALS – and her aunt is dying of it right now.  This is difficult on mommy especially.  Rather than re-hash a post from last year I will point you to Tammy (a new blogging friend who also happens to be fighting ALS)’s blog as she put up a post today that included something mommy wrote last summer.  

Please pray for scan results, patience and the ability to make it emotionally through the next couple of weeks.

14 Shared:

At Thursday, February 02, 2006 7:40:00 PM, Anonymous Melenie Duval Left a thought...

Just taking time to check up on you guys. We wanted you to know that while we don't often post, we visit your site everyday and pray for you every night before heading off to sleep. We have become truly addicted to this blogging thing (yours being top on our list) and feel like we are able to part of your lives even when we don't see you. We have truly appreciated getting to know you and are thankful for the wonderful things you have done for us (food and yummy cookies!!). We will continue to pray for all of you and especially Rebekah as you walk through this next week and days of waiting. You guys are such a special family and we pray for many years ahead with both your darling girls.

The Duval family

 
At Thursday, February 02, 2006 7:42:00 PM, Blogger Julie Q Left a thought...

I read everyday. Rebekah and your family are in my thoughts daily. Waiting is hard.

 
At Thursday, February 02, 2006 10:44:00 PM, Blogger Lora Left a thought...

You are so right. We don't know if there is a tomorrow. Just because Griffin is in good health today doesn't mean that my moments with him should be taken for granted. I try my best,despite my issues, to live in the moment and to treasure each one as if it were the last. Each day I try to live as a mindful being and to soak up my "sonshine's" rays of purity and precious light. Thank you for your message and the reminder that we all need to keep in mind the here and now, to not get lost in the past or to always focus on the future. I am going to try even harder now to give to Griffin all the love and attention that I can muster up. I want him to know how how intense my love for him is and how important he is to me. I hope that many many parents read your message and learn from it so that they give their children extra hugs and kisses and lots of one on one attention that they so deserve.
Hugs to all of you

 
At Thursday, February 02, 2006 11:00:00 PM, Anonymous Anonymous Left a thought...

I'm trusting God with you that all scans and tests will bring a good report and that you are comforted with peace while waiting for the results. You are in my thoughts and prayers daily. Keep on holding on. Leanne from Pa.

 
At Friday, February 03, 2006 12:24:00 AM, Blogger Deb Left a thought...

I read these two verses yesterday:

But let all who take refuge in You be glad;
let them ever sing for joy.
Spread Your protection over them,
that those who love Your name may rejoice in You.

For surely, O LORD, You bless the righteous;
You surround them with Your favor as with a shield.
--Psalm 5:11,12

I am praying that the Lord will do as He says in His Word as you continue to take refuge in Him. May He surround you and Rebekah with favor and spread His protection over your family.

I stand in agreement with you for Rebekah's complete healing and ask that God's peace - which passes all understanding - will keep your heart and MIND in these 'waiting' days.

God is able!
Deb

 
At Friday, February 03, 2006 3:56:00 AM, Blogger Alison Left a thought...

Thanks for reminding us not to take any time we have for granted.
Praying today goes well.

 
At Friday, February 03, 2006 4:04:00 AM, Anonymous Anonymous Left a thought...

All of you and the familys that I have read about, are very special,
I can't have kids, but if I did I don't know if I could deal with what you all put up, but with the grace of God, you are!
thank you for sharing your lifes with us! :)
as always praying
huggs
janice

 
At Friday, February 03, 2006 7:43:00 AM, Blogger Mike&Mari Left a thought...

Mike and I are still here too. Just squeezed on time. With Mike's dad fighting cancer too that keeps us busy. We are still praying every day for all of you, and will pray for good test results. I'm hoping to have time to do cookies and some other goodies for you after my brother's visit next weekend. One of my friends a singer/songwriter wrote a song several years ago, a line from it really fits Rebekah's situation and yours - "we don't know what's on the other side of the hill, but someday we will". God knows what's on the other side of the hill, and He will take us there in His time. That's what my friend was alluding to in his song, and Praise God that He knows, and will do what is best for all of us. Love to all.

 
At Friday, February 03, 2006 9:09:00 AM, Blogger TJ Left a thought...

How can one put one step in front of the other with so many obstacles?
I am speechless. There just aren't any words...
{{{ Hugs}}}

 
At Friday, February 03, 2006 10:30:00 AM, Blogger Dawn Left a thought...

Life is a blessing each and every day we have. It's how we live it while we are here.

You guys are amazing. I pray for you and that the test bring wonderful news.

 
At Friday, February 03, 2006 11:04:00 AM, Blogger My Kid's Mom Left a thought...

The waiting is so difficult - but I am glad to see that you are feeling confident, overall. Nonetheless, the prayers will keep on coming!!!

I love ER, too - I watched last night, and yes, it was difficult to see (I have a sister with Parkinson's disease, which is somewhat similar to ALS).

 
At Friday, February 03, 2006 12:55:00 PM, Anonymous Teresa Left a thought...

Always good to be reminded that tomorrow does not always come for everyone. Cherishing my family, my children,my friends and remembering to practice love and forgiveness every day.

 
At Friday, February 03, 2006 2:18:00 PM, Blogger JodiTucker Left a thought...

Praying right now for His peace and serenity as you are in the waiting phase with much testing to come for dear Rebekah. Each day of life is still a gift from God even when our kids are getting older and on their own (or almost)....Your blog is a true realization of that fact.
It also brings to mind how much my mom and dad, dear Rebekah's great aunt and uncle, loved me as parents for so many years, and still do, just as adult-to-adult now.....again, praying for you all!

 
At Friday, February 03, 2006 5:45:00 PM, Blogger An Ordinary Christian Left a thought...

Thank you for sharing. I am so sorry for all that you and your daughter and family have to go through. God is difficult to understand sometimes. Thank you for trusting Him.

 

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