Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.

Tuesday, January 31, 2006

An Interesting Day

What a day! Rebekah was up early (at about 7:30) and didn't want to go back to sleep. Sarah continued to sleep in, until about 9:15. The girls played (some with each other, at times taking toys from each other), ate (Sarah like a piggy, Rebekah like a mouse), napped (both quite a bit), filled their diapers, laughed, cried, tickled each other and Mommy and generally had a good day.

This afternoon, we watched out the window while it snowed (yes snowed). It has been raining and raining and raining and today for a short while it snowed. The temperature was dropping, too, which had us thinking it might start to stick. It never did and it warmed up, but it was neat to watch (from the warmth of the house).

Fran called and brought out some food and LaDonna brought some food from Sandy, too. It is great that I don't have to worry about what to fix for dinner, especially when life is hectic and the girls are taking extra care. Thank you so much Fran, Sandy and LaDonna!

The girls seemed to go to bed well. Then Sarah woke up screaming - she had lost her binky. Mommy had to search for it and found two hiding under her crib.

Then, Rebekah woke up screaming. She wanted her food stopped and disconnected. She wanted a diaper change, too. She said she had owies, but didn't want any medicine. I gave her some morphine, anyway, as she seemed to need it. I stopped and disconnected her food, changed her diaper, sang to her, and started her music. She still wasn't happy and was crying, but nothing I was doing was helping, so I told her I loved her and that she needed to go night night and left the room. She finally settled down. Before, I go to bed, I'll connect her food back up and get it going again.

Daddy is still not feeling well. Fran brought some Zicam for him, so hopefully that will help. He went to bed early tonight and I hope the extra rest will help, and that he won't wake up too early without being able to get back to sleep.

Nikolette's services are tomorrow, so please keep her family in your prayers. This cancer journey has so many ups and downs. Nikolette's family is coping with what we all fear - the death of their child. We grieve so much for this family. We rejoice with families when things are going well and we cry with families when things are going wrong.

4 Shared:

At Wednesday, February 01, 2006 3:38:00 AM, Anonymous Anonymous Left a thought...

I glad that you have good friends there to help you out.
it puts a smile on my face to hear the girls are playing together like sisters do :)
Rebekah, sorry to hear that your daddy isn't feeling good! will say a little prayer for him, that he is better soon.
and will be praying for Nikolette's family too.

At Wednesday, February 01, 2006 3:43:00 AM, Blogger Danny Sims Left a thought...

What a day indeed. When you write about connecting and disconnecting Rebekah's food, for some reason that gets to me. Going to the doctor, being at the hospital, holding her, even giving her morphine... All that I can read and not react to so much. But the other somehow gets to me. Maybe it speaks to the hard reality of what you're doing. Little girls ought not to have to have food connected and disconnceted... Maybe that's it. Anyway, this post touched me. I'm praying for you all.

At Wednesday, February 01, 2006 6:54:00 AM, Anonymous Teresa Left a thought...

It is a blessing to read of good family moments and memory makers that every family deserves. God continue to pour out His love and healing power on your family.

At Thursday, February 02, 2006 1:05:00 PM, Blogger Tammy Left a thought...

I'm so glad you have help with meals! It must be so hard for Rebekah to really describe or communicate her pain.

Bless her heart and prayers for Nikolette's family.


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