Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Monday, January 30, 2006



Another Monday

Rebekah didn't eat much today, but wanted some in front of her while the rest of us age. Her diaper rash is getting better, but it still isn't pretty. I'm keeping it covered with an ointment (Xenaderm) that will help it to heal. We used the same ointment on the worst of Rebekah's radiation burns. She continues to ask periodically for "blue" owie medicine (the only medicine that she gets that is blue is morphine) and does not want the daily GCSF shot.

She seems to be a little more tired, taking more naps. It could be from her dropping blood counts. Her nap this afternoon was on the floor. I'm not sure why, but at some point she crawled out of bed and onto the floor in her bedroom and fell asleep.

Rebekah has been tolerating her feeds today, so that is always a good thing.

Sarah has been a tired girl, too. I think she is probably growing. She is sleeping longer during the day. She got up this morning and after eating some breakfast, wanted to go night night. Are we starting a new trend?

Daddy has been fighting a cold. That tends to make him cranky and less patient. Unfortunately, he still has to work and had lots of things to do today, so he didn't get a break today. Please pray that he feels better soon.

Mommy has been dealing with mail, bills, dishes, and ignoring laundry and cleaning (at least for today) as I can only do so much. That is, of course, in addition to being Mommy to two beautiful and delightful girls. They have both made me smile and brought tears of joy to my eyes today. Rebekah is being such a big girl and such a big helper. She is always trying to clean up, get things out of the fridge, get her sister food, help with her (or her sister's) diaper changes, etc... Sarah is growing up so fast. They are beautiful girls, each in her own way. How can I not smile and be thankful for what I have? God is good!

8 Shared:

At Monday, January 30, 2006 11:28:00 PM, Blogger Deb Left a thought...

Ignoring laundry and cleaning is always a good thing! ;)

...praying that your time is multiplied and you'll be able to accomplish all that you need to accomplish without feeling overwhelmed or neglectful of the girls!

...praying for Scott's health too!

God bless you,
Deb

 
At Monday, January 30, 2006 11:38:00 PM, Anonymous kelli Left a thought...

I love those moments as a parent that you just look at your kids and if it were physically possible you would burst with love.

 
At Tuesday, January 31, 2006 5:54:00 AM, Anonymous Teresa Left a thought...

Got to laugh at the slip of tounge there. Rebekah sat while the rest of you age. ate? Anyway, still praying for you all. Healthy minds, bodies and souls. Love,Teresa

 
At Tuesday, January 31, 2006 8:18:00 AM, Blogger Carol Warlick Left a thought...

It is so wonderful to hear a brightness in your (voice) updates. Rebekah and Sarah are true delights and each has their own personality that just makes you smile. Take the time to ignore the laundry and cleaning and enjoy the girls they grow up too fast. I can just picture Rebekah sleeping on the floor in her room, what a beautiful picture. Thank you for keeping us updated and I pray that Rebekah continues to heal. ALways in my thoughts and prayers

 
At Tuesday, January 31, 2006 8:41:00 AM, Blogger Tammy Left a thought...

I'm so glad you are all home together! Laundry can wait :)

I hope dad feels better soon and tell him that was just a funny cat picture. Not my cat. lol

God Bless

 
At Tuesday, January 31, 2006 10:39:00 AM, Blogger mommyguilt Left a thought...

I'm so far behind...been doing home stuck and battling the evil cold myself, but never stopped my prayers. The laundry can wait. Rest, make sure dad rests, too.

My love to all of you!
Christina

 
At Tuesday, January 31, 2006 7:36:00 PM, Blogger Maria del Carmen Left a thought...

I haven't been here in a while...since I started my new job. I am so excited about her being home with you...and you're talking about school?! Awesome! God is great!!

 
At Tuesday, January 31, 2006 7:40:00 PM, Blogger Jayleigh Left a thought...

God bless all of you! Even if I don't come here all that often, I still pray for your family continually.

 

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