A Rough Night
It was a pretty rough night. She got pretty agitated last night when we needed to come back to the room because her pump battery had run out. It was about 7:30 pm. She was acting tired, but surely did not want to go to sleep.
Mommy stepped out of the room for a few minutes (leaving her with Daddy and Grandma A) and by the time I walked back in, she was screaming inconsolably. We asked for some benadryl, which didn't do much (at least it didn't put her right to sleep). It took Mommy a half hour or so to get her to quiet down and we played for a few minutes without her continuing to scream. She continued to fuss and not be happy for another hour. She finally fell asleep about 9 pm. It makes for a frazzled Mommy and whoever else is visiting.
About 11 pm, her mesna (the bladder protectant) finished and they got her blood transfusion started. Mommy always worries a little with the blood transfusions, especially after hearing of allergic reactions that other kids have experienced. So Mommy wasn't able to go to sleep right away. Finally about 12:30 am, Mommy was able to lay down and try to sleep.
About 3 am, Rebekah was awake and screaming. The nurse had been in, changing her diaper or finishing the blood transfusion or something and had caused Rebekah to stir. Most of the nurses try really hard not to wake up the kids, but they can't always help it. Mommy had to get up and tuck Rebekah back in and get her to go back to sleep.
Then about 5 am, she woke up again screaming. Once again, Mommy had to tuck her in. This time, we asked for some benadryl to help. We were able to get her tucked back in and back to sleep.
About 6:15 or so, she was up and coughing and agitated and started throwing up. Uugh! I think she emptied her stomach. We had to estimate how much she had lost, so that we could make up for it in replacement fluids. Meanwhile, she needed new jammies, new diaper, new blankets and pads, etc... Not exactly the way, I wanted to spend my early morning. And of course, she thought that she wanted to go "out" of her room in the wagon. Once again, Mommy had to convince her that she wanted to go back to sleep.
Around 8 am, the nurse was in to do vitals and change her diaper - which she slept through. Yeah! About 9 am, Mommy finally got up and started her day. Rebekah continued to sleep for another hour or so.
Chemo, which was supposed to be started about 9 am this morning didn't get up from pharmacy until 11 am. Since it started yesterday at 11 am, we weren't really "late", but still later than it was supposed to be. We have to wait for at least 24 hours after chemo is started before we can head home. This week, that isn't a big deal, but there are other times that it can be a bigger deal.
Share a thought or prayer: 11 Comments
11 Shared:
Sorry it seems to be such a rough day. Praying tonight is better....
I have been reading about Rebekah's situation for awhile now and haven't commented because I did not think it would matter to you since you do not know me, but in your last blog you mentioned that it helps you to know people are interested. I check it out everyday and rejoice when she is having a good day and it makes me sad when things are rough. I can't even imagine how hard this is on you and your husband. Just wanted you to know that there is someone in Texas who cares and lifts you up in prayer.
I am sorry to hear that your night was rough. It must be hard on all involved when she is having a rough day for whatever reason. I do hope that things will improve so she isn't feeling as uncomfortable or whatever is causing the "roughness". I will continue to pray.
How do you do it, Frances? That is.....function at all with the consistent loss of sleep? It can only be through the prayers of so many for you and Rebekah and Scott and Sarah, too.....the many of us, family, friends, new unknown-to-you-personally friends, etc. who care deeply about your lives and desire healing for Rebekah. Thank you Lord for hearing our prayers for these dear ones in OR!
Love to you, Jodi in OH
Wishing you a better night tonight with more hours of sleep.
hugs to you all,
~Molly~
I will pray that you have a good nights sleep tonight. I pray that you will be refreshed and rejuvenated tomorrow morning. I'm sure it is hard waking up to her screaming, must be very scary and also startling to you. Try to get as much sleep as you can while she is napping and doing her therapies. You need to take care of yourself so you can take care of her! I will continue to lift your family up in prayer.
Off the subject, but maybe you would like to hear things from other parts of the country. I live in Arkansas and the leaves are just now turning colors. It is so beautiful outside. Last week they were still green and just overnight it was like God took a paintbrush and dabbed stunning colors throughout our landscape. I just love this time of year. I'm sure it is beautiful up there as well.
The pics are precious, thanks for posting!
~Dawn
I know how difficult it can be when you're awakened several times a night --Olivia hasn't slept through the night since we returned from our vacation at the end of September. I have no idea why ---but the reasons she wakes up in NO way compare to the things you are dealing with. I want you to know that when Olivia's crying and I'm stumbling from our room to hers at 3am - getting her a drink or fixing her blankets --I always say a quick prayer for all of you. Praying that Rebekah sleeps well and that Mom and Dad get all the rest that you need in order to get through the next 24 hours.
"One day at a time sweet Jesus
That's all I'm asking from you.
Just give me the strength
To do everyday what I have to do..."
The days will soon add up to weeks ---and you will be finished with this chemo process before you know it! ...praying that the time will pass quickly for you!
Sleep sweet,
Deb
I hope that you are able to go to home soon. I know Rebekah would prefer to be there. I pray for all of you each and every day. I hope that tonight is going better and that sleep is being had by one and all.
How often does she have to have blood transfusions???
I am praying. You have a very brave/strong little girl. :-)
Praying for all of you, but especially that Mommy get's enough rest to be renewed.
**hugs**
I hope Mommy has had the chance to catch up on her sleep and you, dear Rebekah, have had a couple restful nights.
You are all, always, in my prayers. I have been visiting often but commenting only on occassion. I have made a promise to myself - after reading Mommy's last post, that I WILL comment each time I visit from now on...
hugs to you all
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