Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
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Saturday, June 11, 2005



Rebekah's Ups and Downs

Today was a bit of a roller coaster day.

Again Rebekah slept in real late. She continues to not be feeling well. She will ask for something to eat and tell us specifically what she wants. Then when she gets it she throws a screaming fit and pushes it away. If she does start to eat something she will be going fine for awhile and then just push it away and start crying. It is pretty obvious that her tummy is bothering her.

Her attitude (temper tantrums) continue to get worse but that, again, we believe to be part of not feeling well. She is not "Getting away with" things, but it is hard to discipline her when we know she's not happy to begin with.

This evening we had soft taco's that Ginger brought to us yesterday. Rebekah ate LOTS. Lots of daddy's and lots of mommy's. She would not, however, eat what was on her plate. I think I had a total of three on my plate that Rebekah ate one of.

After dinner Rebekah and daddy went out to the barn to do some cleaning/organizing. Rebekah likes the barn and she played out there for quite awhile. She found her little pink motorcycle "burried" in a corner and wanted to sit on it. I don't know if she will ever actually ride it but she loves to sit on it and she knows it is hers.

After quite a bit of time in the barn she wanted to go run around the yard. She headed straight to her playset but, like yesterday, she would not swing too much. About 3 minutes and she was saying and signing "all done." Her tummy maybe? She then wanted to go inside.

Just before bed time we had to change the connectors (hubs) on her central line and give her a shot. She did okay with the shot but is not at all happy about having to pull off all the tape each time. It was much nice when her tubes just hung free and all we had to do was clean them to maintain them but we just can't take a chance of these pulling out again. I feel bad for hurting her by pulling off tape and putting more on, but...

Thank you for your prayers and support. Please don't forget about us as we are still just at the beginning of this.

4 Shared:

At Saturday, June 11, 2005 10:43:00 PM, Anonymous Anonymous Left a thought...

We have not forgotten about you. Even when our own lives get a little too hectic, we still find the time to pray for strength for your family. Please know that we are here for you if you need us.

 
At Sunday, June 12, 2005 7:54:00 PM, Blogger JodiTucker Left a thought...

Hello dear Rebekah,

Even when our lives get hectic with job changes,graduations, mother-in-law in hospital, etc., the little green bracelet is my DAILY reminder to pray for you, and I do!!....All the OR Adams/Mickley/Schwander family are in my thoughts and prayers.I am petitioning the Lord specifically for your healing and for His strength and love and care to be wrapped around you parents and Sarah in this battle against cancer. You are loved, prayed for, and not at all forgotten!!

Cousin Jodi in OH

 
At Sunday, June 12, 2005 10:41:00 PM, Anonymous Anonymous Left a thought...

Dearest Rebekah-
Aunt TT is thinking of you ALWAYS! Jacob, Michael, Uncle Mark and I pray for you throughout each day! Each Sunday I pray at the cross for each of you- for strength, health and grace!
Love each of you lots,
Tiffany

One more thing, your sweet friend, Angel, has made you a get well soon card. I will bring it out this week!

 
At Sunday, June 12, 2005 10:42:00 PM, Anonymous Anonymous Left a thought...

Dearest Rebekah-
Aunt TT is thinking of you ALWAYS! Jacob, Michael, Uncle Mark and I pray for you throughout each day! Each Sunday I pray at the cross for each of you- for strength, health and grace!
Love each of you lots,
Tiffany

One more thing, your sweet friend, Angel, has made you a get well soon card. I will bring it out this week!

 

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