Visit Rebekah's Page to get updates, read messages and send messages to Rebekah and her family through comments. This is a public "diary" of a family whose little girl started a battle with inoperable cancer in April 2005. In December 2007 our house burned down. And in September 2009 Mommy was diagnosed with a terminal disease (a genetic form of ALS) that took her to Heaven in July, 2011, leaving Daddy and two young girls to make it on their own. Over several years of ups and downs, you will get into our hearts, minds and souls as we share joys and sorrows. It can sometimes be very difficult to read. We hope it is also uplifting. Please find joy in what you read here.
____________________________________

Tuesday, June 07, 2005



Tuesday Afternoon - Doing Better

Rebekah is doing better today than last night. She hasn't gotten sick today - but then she has not eaten a whole lot either. Her IV fluids of Dextrose (sugar) in them to help replace some of what she has lost and is not eating.

We continue to have problems with her central line. Last night she must have rolled on it funny and has pulled on the extra loop/stitching that was put in as a security measure. We talked with the surgeon (who was not having a very good day apparently and acted like a normal surgeon instead of the nice jovial social doctor that we have known him to be) and he was pretty direct that he has done all he can do to secure the line and it is up to us to "tape the blank out of it" to keep it secure.

We now have two "op sites" which are clear adhesive strong bandages about 3" square and lots of tape holding the tubes to her body. We then have her torso wrapped in an ace bandage to secure it even more. It looks like we will have to keep this up for a while. If we can get 6-8 weeks (or longer) without her pulling it out it should "Grow" into her skin and not be pulled out as easy.

Amanda is here and helping mommy with the girls and daddy is out in the trailer getting some work done. His clients appreciate that :)

Please pray that her central line stays secure and she leaves it alone.

0 Shared:

Post a Comment


Thank you from Rebekah...

Back to Rebekahs home page...