Sunday Evening, Back At The Hospital

I know it has been a few days since we have had an update. Basically things have been going along fairly “Regular” and it’s hard to get to putting up an update and then say not much has changed. Well, until today, not much had changed.

It is Sunday evening and we are sitting in the trailer in the hospital parking lot. It is 9:30pm and Rebekah is bouncing off the walls and won’t listen at all (more on this later) and Sarah is screaming at the top of her lungs which she has been doing since we tried to start putting her down over an hour ago. Now, just in case you don’t have the full picture, we are ALL 4 in an 8x20 room. The frustration is growing on all parts.

The last few days Rebekah has started acting out. I suppose this could be the normal “Two’s” that she has not really gone through but it is hard to say. She defies everything she is asked to do. She says “no” to everything. She scowls at you if you ask her to do something. Then, when called on it, she turns into miss perfect pretty little girl and plays the “oh poor pity for me” game. Last weekend when all of the family was around she would throw a temper tantrum when someone asked for something that she did not want to do. When she found that was not working and she still had to do it she started pulling off her hat and rubbing her bald head as if to say “but Grandma/Aunt/Cousin/Mom/Dad etc, I’m bald and I’m sick so please let me get away with…” It didn’t work and she is getting worse. Ugh.

Today we packed up everything for the week and headed to the hospital just after 1pm. She has surgery early tomorrow morning to re-place her central line and then will be admitted to start her chemo (assuming the surgery goes okay). It seemed like a better thing to do to get down here tonight than to try and get up at 4am to try and make it down here in the morning. Then, we came even earlier this afternoon because the hospital was putting on a Cancer Survivors “fair”. Rebekah “won” the prize for being the youngest survivor there and received a full basket of toys, games, dolls, etc.

For dinner we met Greg and Christine at a restaurant close by. It was nice to get out and see some friends in a somewhat normal environment.

Please pray for a good surgery tomorrow and a good week of Chemo. This is the set of drugs that seems to affect patients the most. It does sound like we will have lots of good help (thanks to Amanda) this week! We’ll try and get updates at least daily while things are going on.